Dr. LESTER & MY FIRST full CONSULTATION WITH results!

09-Dec-2011 – Dr. LESTER & MY FIRST full CONSULTATION WITH results!
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Hi,

well it was CT Scan on Wednesday and true to form Velindre does us proud by avoiding a long period of ‘Super Scanziety’ and it is straight in to see Jason Lester my oncology consultant who has planned and orchestrated my treatment since my cancer moved up a grade from the care of ‘urology’ specialists at The Royal Gwent in Newport.

It became obvious a year ago that I was moving up a pay grade!

My op on New Years Eve showed that I was in trouble! Then eventually the NHS managed to get their act together and organise a CT Scan – due to the utter incompetence of NHS Wales the scan I should have had in January eventually delivered a result in April! This delay due to NHS Wales mismanagement see CLICK HERE – the outright theft of NHS money to fund NHS Wales vanity projects is a disgrace! How many people have died so that Welsh politicians could rebrand to suit their politics!!!!!!!!!!

I met Jason Lester in April and from his comments it was clear that my prognosis was NOT good and my life expectancy ran to just a couple of months!

My thanks to Dr. Lester and all those caring people on his team and lets not forget the front line staff at the Gwent who have provided the treatment and care that has kept me alive for the last 13 years of cancer!

Dr. Lester’s clinic was running spot on and at 14:00hrs. my ‘Super Scanziety’ ended with an early Christmas present!

My Flexi at the Gwent had been really good with no signs of tumour and even scar tissue was hard to find but surprisingly the CT Scan was also excellent – No sign of any additional tumours with at least a 50% shrinkage of the original tumours in the abdomen and lymph system – thatn is not to say the cancer is gone but it is probably clear with the original tumours either dormant or just scar tissue.

So now with the cancer seemingly gone it is now a watching brief for the future.

I can but hope that after 13 years under cancer’s sword of Damaclese with both short and long term scares!
there will at last be a period of respite!

My thanks to all who have done so much to help and encourage me, support and help during these 13 rather difficult years – Thank you but let us not forget the many who have not been so fortunate and on that note please spend a moment thinking of those you have known, cared for or loved who lost their private war with cancer during those 13 years – not least in my life have been John, my Father, Jean, my Father’s younger brother Alan, Peter, Dave and so very many more!

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 Please Be Sure To
My Blogs
To Spread The Facts World Wide To Give Others HOPE
I Have Been Fighting Cancer since 1997 & I’M STILL HERE!
I Have Cancer, Cancer Does NOT Have Me
I just want to say sorry for copping out at times and leaving Lee and friends to cope!
Any help and support YOU can give her will be hugely welcome.
I do make a lousy patient!

.
If YOU want to follow my fight against Cancer from when it started and I first presented with symptoms see The TAB just below the Header of this Blog. called >DIARY of Cancer< just click and it will give you a long list of the main events in chronological order.
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Thoughts and comments will be in chronological order in the main blog and can be tracked in the >ARCHIVE< in the Right Sidebar.

You may find the TABS >MEDICAL LINKS< and also >CANCER LINKS< of help.
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YOU are welcome to call me if you believe I can help in ANY way.
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Posted by: Greg Lance-Watkins
tel: 01594 – 528 337
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TWITTER: Greg_LW  
Health/Cancer Blog: http://GregLW.blogspot.com  
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Was This Why My Scan Delay Put Me On DEATH’S HIGHWAY?

Was This Why My Scan Delay Put Me On DEATH‘S HIGHWAY?

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Hi,
one is forced to wonder if this is the reason why a scan I should have had in the first 2 weeks of 2011 was delayed until 04-Apr-2011 thus necessitating Chemo & Radiation!

Had Chemo been needed it could have commenced by the end of January – yet at that stage a simple coin (cuff) cut around the tumour on the bladder wall MIGHT have been all that was required.

It can be argued that due to NHS Wales dishonesty and crass incompetence CLICK HERE a deliberate policy decision was taken to withold treatment by ensuring there was insufficient Radiography facilities for early detailed diagnosis of cancer.
Or was my cancer the result of an even more sinister decision making process as revealed in the article below. Do the numerous QUANGOs feeding parasitically off of The NHS and the excess of management directly cause the inadequacy of the direct clinical budget to deliver the service Lord Beverridge defined before the bufoon Aneurin Bevan politicised the set up of The NHS when given the job of implementing the NHS Plans of Beverridge’s.

GPs ordered to ration cancer scans: Lives ‘being put at risk’ by bureaucrats’ new cost-saving directive

Last updated at 12:26 PM on 8th September 2011

Slashing scans: GPs are being ordered to refer patients to a hospital doctor, who will decide if a scan for cancer is needed - but experts warn late diagnosis mean it can be too late for cancer sufferers

Slashing scans: GPs are being ordered to refer patients to a hospital doctor, but experts warn late diagnosis mean it can be too late for cancer sufferers

Family doctors have been ordered to ration the number of patients they send for life-saving cancer scans to save money.
They are being told to slash the number they refer to hospital for tests including ultrasounds, MRIs and CT scans commonly used to spot tumours.
Last night experts warned the cost-saving measures increased the risk of patients being diagnosed too late and dying unnecessarily.
Britain has one of the lowest cancer survival rates in Europe, and experts say late diagnosis is to blame.
The cuts are being brought in despite Government pledges to give GPs better access to cancer tests in the hope of saving 5,000 lives a year.
Health Secretary Andrew Lansley promised to set aside £750million to help family doctors send patients directly for scans instead of having to refer them to a consultant to decide whether or not they should have a scan.
This process could add several weeks on to the diagnosis by the time patients have waited for an appointment and a slot for a scan.
But it has since emerged that a quarter of Primary Care Trusts are actively discouraging GPs from sending patients for these tests.
 

The figures were obtained through a freedom of information request by GP Newspaper. Of the 116 PCTs which responded, a quarter said they had policies to reduce ‘inappropriate’ referrals by GPs for scans.
And five – Bury, Salford, South West Essex, Southampton and Stockport – have banned family doctors from sending patients directly for scans, flying in the face of the Government’s pledge.
Order: Family doctors have been told to stop sending people for MRI scans to save money

Order: Family doctors have been told to stop sending people for MRI scans to save money and instead send them to consultants to decide whether they need the tests and scans

Instead they are being encouraged to refer patients to hospital doctors who will decide whether or not they need a test.
Dr Clare Gerada, chairman of the Royal College of GPs, warned that stopping GPs from sending patients for scans will delay diagnosis of cancer.
Doctor: A quarter of Primary Care Trusts are actively discouraging GPs from sending patients for cancer tests

Out of my hands: A quarter of Primary Care Trusts are actively discouraging GPs from sending patients for cancer tests

She said: ‘This is about money and finances, not about putting patients first.
‘How can a junior doctor in a hospital refer for an ultrasound while I – with 25 years’ experience – have to refer a patient to a specialist?’
Lindsay Wilkinson of Macmillan Cancer Support said: ‘Earlier diagnosis makes a huge difference to the chance of surviving cancer. It is vital that GPs are given direct access to diagnostic tests so that those with suspected cancer are diagnosed at the earliest opportunity.
‘Stopping GPs directly accessing scans could be a false economy if GPs have to refer to a hospital specialist who orders the scan anyway.’
Sarah Woolnough of Cancer Research UK said: ‘It is very worrying to hear of PCTs setting referral targets and decommissioning direct access to tests that could speed up a cancer diagnosis.’
Millions of patients a year are referred to hospital for scans including MRIs, ultrasounds, CTs and colonoscopies. They are often used to check for tumours but also to diagnose heart disease, strokes, Alzheimer’s Disease and problems with joints.
PCTs have to pay a hospital for every patient referred for a scan. A CT scan can cost up to £600, an MRI around £500 and an ultrasound about £100, on top of the cost of a patient seeing a specialist.
Last year a major study showed that the UK had consistently lower survival rates for some of the most common cancers compared with Australia, Canada, Denmark, Sweden and Norway.

PATIENTS TOLD TO ‘TREAT THEMSELVES’

Patients with conditions such as heart problems, lung disease and diabetes will be encouraged to treat themselves at home rather than seeing a GP. 
Under guidelines from the Royal College of GPs, 15million sufferers could be taught to carry out tests such as measuring their blood sugar, before giving themselves the correct dose of drugs.

It is hoped it could save the NHS millions of pounds in unnecessary appointments.
But critics have warned that relying on patients to look after themselves is ‘unsafe’ and could put lives at risk.
In January Andrew Lansley promised to ensure Britain’s cancer survival rates were ‘the best in Europe’ by giving GPs better access to tests.
Professor Sir Mike Richards, National Clinical Director for Cancer, said: ‘Early diagnosis of cancer is a very high priority for the Government. That is why the Cancer Outcomes Strategy, which we published earlier this year, put an emphasis on improved GP access to diagnostic tests.
‘We are working to improve access to relevant diagnostic tests for GPs and will shortly be publishing guidelines which have been developed by GPs working with radiologists and other specialists.’
Although the NHS has been protected from the Coalition’s programme of spending cuts, in reality it needs big above-inflation rises every year just to ‘stand still’.
This is because of factors such as the ageing population and rapid medical advances.
Many workers in the NHS argue that the 0.1 per cent real terms annual rise in the NHS budget is, in reality, a fall.
Health trust bosses have also been told to make £20billion in efficiency savings over the next few years.
To view the original article: CLICK HERE
 .
 Please Be Sure To
My Blogs
To Spread The Facts World Wide To Give Others HOPE
I Have Been Fighting Cancer since 1997 & I’M STILL HERE!
I Have Cancer, Cancer Does NOT Have Me
I just want to say sorry for copping out at times and leaving Lee and friends to cope!
Any help and support YOU can give her will be hugely welcome.
I do make a lousy patient!

.
If YOU want to follow my fight against Cancer from when it started and I first presented with symptoms see The TAB just below the Header of this Blog. called >DIARY of Cancer< just click and it will give you a long list of the main events in chronological order.
.
Thoughts and comments will be in chronological order in the main blog and can be tracked in the >ARCHIVE< in the Right Sidebar.
You may find the TABS >MEDICAL LINKS< and also >CANCER LINKS< of help. . YOU are welcome to call me if you believe I can help in ANY way.
.

Posted by: Greg Lance-Watkins
tel: 01291 – 62 65 62
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18-Mon-2011 MEA CULPA!

18-Mon-2011 MEA CULPA!

Hi,

my blog has slipped behind!

Firstly I am due for Clinic at 14:30hrs. later today and then hopefully Chemo. on Wednesday.

My Diary section is a complete muddle due to re-scheduling.

My Uncle Alan at 83 still has no answers but had blood tests in preparation for an FNA on Tuesday which is a little daunting at 83 since St. Thomas’s failed when they tried!

An FNA is a Fine Needle Aspiration in which they have a CT scan and then insert a needle into the tumour to withdraw a sample for biopsy. Let us hope all goes well – Brenda is going with him, no doubt after over 60 years together she is far too angst ridden to remain at home alone!

Well as you gathered my leukocytes and platelets were too low for last weeks chemo. so let us hope they have built up adequately for this week – tomorrow will tell.

I feel remarkably well but constantly tired.

Perhaps part of the reason for my blog lapsing is that I am still angry with the incompetence of the management and political structure of The NHS in Wales and before I actually write my formal complaints and publish them wide and far I incline to calm down and consider vengeance is a dish best served cold – once I start I intend to eviccerate the bastards who quite clearly are responsible for my cancer having metastisised to the Lymph glands.

It is clearly a management failure due to the squandering of public money designed for the NHS on politicised badging projects just because they could, that cost £1Billion rather than invest in fundamental equipment to ensure Radiography kept pace with medical and clinical need.

Now we have had the direct example of the F**k Off and die its Friday principle of NHS Management that too will be expounded in ruthless detail.

My very good friend at The Sunday Times is showing much interest in the story as not only did his Father in Law die of cancer but he has very much held my hand in the past. Without his intervention at the time there is every possibility my Nephrectomy would have been delayed yet further ensuring my death 10 years ago!

I will aim to in fill the missing last week in the next few days and will also try to update The Diary to the New Schedule also!

I just want to say sorry for copping out at times and leaving Lee and friends to cope!
Any help and support YOU can give her will be hugely welcome.
I do make a lousy patient!

If YOU want to follow my fight against Cancer from when it started and I first presented with symptoms see The TAB just below the Header of this Blog. called >DIARY of Cancer< just click and it will give you a long list of the main events in chronological order.
.
Thoughts and comments will be in chronological order in the main blog and can be tracked in the >ARCHIVE< in the Right Sidebar.
You may find the TABS >MEDICAL LINKS< and also >CANCER LINKS< of help. . YOU are welcome to call me if you believe I can help in ANY way.
.

Posted by: Greg Lance-Watkins
tel: 01291 – 62 65 62
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07-May-2011 – good NOT TO HAVE THE FAILING NHS MANAGEMENT!

07-May-2011 – good NOT TO HAVE THE FAILING NHS

The logo of NHS Wales.Image via WikipediaMANAGEMENT!

Hi,

it is 08:30hrs. on Sunday morning and I’m showing signs of recovering from the damage that the utter incompetence of the management of the NHS in Wales was inflicting on me from Friday early evening until yesterday afternoon!

I was up on Friday morning after just on 4-4.1/2hrs. sleep and just as I was going to bed again tired I was called into the Royal Gwent just before 20:00hrs.

It took around 4 hours to ascertain I had a very low platelet count at 34 when petechiae was plain to see and recognise for anyone trained. It was also then apparent that anti biotics were required and the suggestion of a transfusion was made.

The decision was taken to watch and wait on the platelet count and decide based on a new set of bloods in the morning – they were taken and they showed a natural improvement in the platelet count to 39.

Still no anti biotics.

Due to crass and incompetent management no bed was found and I was forced to spend the night in a standard office chair in a side consulting office!

Not unsurprisingly I had no sleep whatsoever.


FINALLY more than 12 hours after I had come to The Gwent and the decision was made that I would have to stay a bed was found – that was 24 hours without sleep – not that it was due to unusual sleep times as I had got up at just after 09:00hrs.

The medical staff have been great up to Doctor level but then  above that in the food chain the system just collapses with more and more management and less and less results.

Read the YELLOW CARD and it is clear Velindre take the situation seriously yet clearly the Gwent’s management care little and do less. How can my treatment so far be seen as other than harming my survival chances which are pretty ropey anyway!

Eventually a porter is found and off we set on the great trek – what no ox waggon!

B6 is the Haematology Ward on the far side of the hospital off of the same staircase (same wing) as Maternity.

Here is the bed/room:

It looks very appealing after so long without sleep or food!

Unfortunately it is not a great deal of use as my petechiae is clearing and really all I want is to see the Consultant get my antibiotics and LEAVE.

There is absolutely no way this visit to hospital has been other than damaging to health and clearly as far as management is concerned the service is attrocious. They couldn’t run a bed and breakfast facility let alone a major hospital – it reflects the entire idiocy of the way Government is run with its massive over staffing, obscene feather bedding, Politically Correct crapology and over paying of top end staff – They are CLEARLY not fit for purpose and incapable of doing their job at any price!

Even were I staying the inconvenience of considering sleep starts with I have eaten nothing of any substance since Thursday as just as this started I was going for a shower before food and then to bed – That was yesterday afternoon!

Further since the room has no door (it is away being fixed!!) and is off of the main ward corridor – there would be little chance of sleep – particularly in view of the fact that the room is directly above the back road to service the hospital overlooking the dustbin / waste area, which is noisy.

You will note also that the sunlight is streaming in and consider how lightweight thin curtains would fail to help!

It is now 11:00hrs. and I’m waiting to see the Consultant in the knowledge that the pharmacy shuts at 12:00hrs. until Monday!

Do enlighten me in what way can my visit to The Gwent be seen as anything but seriously deleterious to my health!

It is no fault of the staff I have seen and it is entirely unfair of their employers to leave them to deal with my very rational and presented anger at such a level of utter incompetence on the part of the management of the NHS in Wales.

Is the aim to kill patients to make savings?

I still have not seen a specialist in this field – I have seen no Oncologist nor a qualified Haematologist – that the service is so far supplied by variously experienced nurses – whose only ranking is to all look like cleaners in their new and hugely costly uniforms all colour coded for insiders and the hell with the patients!

WHAT IS WRONG with a simple block of embroidered badge saying >STAFF NURSE< or >WARD SISTER< or >NURSE< or >HEALTH CARER< or even >CLEANER<
Too simple I guess when EVERY uniform has an embroidered badge showing they are NHS Wales in two languages – I just might have twigged that but what competence are the different colours?

I just want to say sorry for copping out at times and leaving Lee and friends to cope!
Any help and support YOU can give her will be hugely welcome.
I do make a lousy patient!

.
If YOU want to follow my fight against Cancer from when it started and I first presented with symptoms see The TAB just below the Header of this Blog. called >DIARY of Cancer< just click and it will give you a long list of the main events in chronological order.
.
Thoughts and comments will be in chronological order in the main blog and can be tracked in the >ARCHIVE< in the Right Sidebar. You may find the TABS >MEDICAL LINKS< and also >CANCER LINKS< of help.
.
YOU are welcome to call me if you believe I can help in ANY way.
.

Posted by: Greg Lance-Watkins
tel: 01291 – 62 65 62

12-Apr-2011 – DEATH by MANAGEMENT?

12-Apr-2011 – DEATH by MANAGEMENT?

Hi,

early screening is a great idea, as one of the great keys to Cancer survival is early diagnosis and prompt treatment.

It does make me wonder that although I have now had cancer for 13 years this latest TCC (Transitional Cell Carcinoma) was obvious during my bladder op. in December – just look at the Cancer Diary and consider the dates!

For more details on TCC CLICK HERE

Having discovered the tumour in the bladder and aware that it MIGHT be through the bladder wall I can only call the 4.1/2 months of delay utter incompetence on the part of management at some level in the idiotic multi level QUANGOcracy that is Britain’s NHS of today, as a result of the 13 years of obscene misrule and economic illiteracy of our Government.

Had my surgeon in December been able to carry on and do the obvious by removing a cuff or coin around the site and re-establish the integrity of the bladder at the time would I now be facing a potential death sentence? Would cancer have ever had the chance to spread to the lymph glands?

Would I need chemo. with its consequences and far from wonderfull side effects and poor prognosis?

To what extent can it now be argued that due to the incompetence of the multi layered QUANGOcracy that is the modern NHS and the childish doctrinal weenie waggling of NHS Wales, desperately wasting public money on reforms and rebadging etc. – not because it provides a better service but purely because they can to hide their over staffing and inadequacies as managers or even politicians they end up killing patients.

Just what is the value of spending a small fortune on rebadging The NHS Health Care in Monmouthshire after Aneurin Bevan when he was clearly utterly useless, was arguably one of the first champagne socialists – neglected his constituents in The Valleys and although married to an outspoken Communist used his Ministerial income to buy a farm in Surrey or was it Sussex.

Just what did Aneurin Bevan ever do for Health Care in Britain let alone wales – it was he who was charged to implement the decision made by the previous Government and agreed to by Labour and The Liberals to impliment Lord Beverridge’s Plan for a National Health Service and almost all of todays problems in The NHS can be attributed to Aneurin Bevin who seemingly was too stupid to understand The Beverridge Plan and could not resist tampering with it – resulting in it becoming a political football with a massive overstaffing of managers relative to medical staff and medical management – we lack even the ability to train adequate staff hence the huge number of aliens imported from third world countries who can ill afford to loose their most valuable assets!

Surely the cost of rebadging in Monmouthshire would have been far better spent on another CT Scanner and better management of MEDICAL resources – who cares what uniform nurses have or what fatuous badges are on NHS vehicles.

I believe a more available scanner would stand far more chance of having saved my life and ensured that the cancer had not spread than any amount of ego trips for inadequates with what can only be described as non jobs!

Many will find this article of interest CLICK HERE
Which together with this CLICK HERE
indicates it is not just The NHS going off the rails!

We seem not only to have moved into a ‘Post democratic Era’ where Politicians are an entity in their own right but where we have little or no meaningful say as all too much of our lives is clearly founded on NON Science, NON Logic, NON Entities and NON Jobs functioning for their own personal gain at the expense of the society they are paid to serve yet seemingly believe are merely there to ensure their incomes!

When will a death due to this level of self serving indifference be found to be at least manslaughter if not murder by a Coroners’ Court or is that as hopelessly unlikely as a Police Officer being charged with murder when they gun down yet another innocent victim!

I just want to say sorry for copping out at times and leaving Lee and friends to cope!
Any help and support YOU can give her will be hugely welcome.
I do make a lousy patient!

.
If YOU want to follow my fight against Cancer from when it started and I first presented with symptoms see The TAB just below the Header of this Blog. called >DIARY of Cancer< just click and it will give you a long list of the main events in chronological order.
.
Thoughts and comments will be in chronological order in the main blog and can be tracked in the >ARCHIVE< in the Right Sidebar. You may find the TABS >MEDICAL LINKS< and also >CANCER LINKS< of help.
.
YOU are welcome to call me if you believe I can help in ANY way.
.

Posted by: Greg Lance-Watkins
tel: 01291 – 62 65 62

11-Apr-2011 – Bowel Screening!!

11-Apr-2011 – Bowel Screening!!

Hi,

Black Humour to the fore:
I was amused today to receive an intriguing envelope in the post today which when opened contained a self help kit for Bowel Screening.

DIY Bowel Cancer Kits are a regular mailing in Wales & Monmouthshire!

You can find full details of the service at CLICK HERE

I was surprised to find that not only is this folder of, quite literally, bumf (spelt thus as it was an acronym emanating originally from Oxford, as I recall, for ‘Bum Fodder’) entirely bi lingual English and Welsh but the entire back page is dedicated to offering to mail out the entire ‘thingee’ in 15 other languages:
Information leaflets now available in Arabic, Bengali, Chinese, Chinese (Traditional), Gujarati, Hindu, Italian, Japanese, Nepali, Polish, Portugese, Punjabi, Somalian, Turkish and Urdu.

I presume that those speaking Eirean or The Gallic – both languages spoken on these islands by the indiginous peoples do not count – it is however all too understandable that Greeks, French, German, Spanish, Dutch and various other Continental EUropeans are of no significance relative to including SELECTED Indian languages when we leave out so many that are relatively common such as Tamil or the languages of the Philipines and Thai – I was surprised to note Spaniards are excluded also!

This early screening is a great idea as one of the great keys to Cancer survival is early diagnosis and prompt treatment.

It does make me wonder that although I have now had cancer for 13 years this latest TCC (Transient Cell Carcinoma) was obvious during my bladder op in December – just look at the Cancer Diary and consider the dates!

I just want to say sorry for copping out at times and leaving Lee and friends to cope!
Any help and support YOU can give her will be hugely welcome.
I do make a lousy patient!

.
If YOU want to follow my fight against Cancer from when it started and I first presented with symptoms see The TAB just below the Header of this Blog. called >DIARY of Cancer< just click and it will give you a long list of the main events in chronological order.
.
Thoughts and comments will be in chronological order in the main blog and can be tracked in the >ARCHIVE< in the Right Sidebar. You may find the TABS >MEDICAL LINKS< and also >CANCER LINKS< of help. . YOU are welcome to call me if you believe I can help in ANY way.
.

Posted by: Greg Lance-Watkins
tel: 01291 – 62 65 62
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