DIARY of Cancer
+ VELINDRE 02
Greg Lance – Watkins
Tel: 01594 – 528 337
November 1998 – I’m damn sure I shouldn’t be peeing claret!
31-Dec-2010 – 07:00hrs. Op on bladder am. By Dr. Raman. Tumour sited on stub of left Ureta entry to bladder – burnt away and captured for biopsy.
Expect possible further surgery about 4 weeks.
Discharged mid afternoon 2011-01-01
03-Jan-2010 – Unhelpful bleed Sunday – spoke to Mary D2W – then infection!
04-Jan-2011 – saw doc. Urine test – Keflex 250mg. 4 a day!
05-Jan-2011 – saw doc. With fungal infection now using Daktacort ointment.
13-Jan-2011 – feeling tired all day – C22:15hrs. Bladder discomfort and then frank mixed (no clots) haematoria! – drink plenty and take self to bed – lets hope it stops!
18-Feb-2011 – still no hospital date rang Sue – WOOPS!!! She will sort it and call me am.
10-Feb-2011 – 11:50 Dr. Pink – seems I have CKD (Chronic Kidney Disease!) reading 47, was 54 in 2008!
16-Feb-2011 – 15:05hrs. GWENT – R.L. GOWER – not sure why I’m seeing him! He’s isn’t too clear on my ‘stuff’. Fortunately Janet took over – Gower gave impression he wasn’t too clear on anything much in life!!
17-Feb-2011 – PHONE CALL from Janet – Adam Carter wants a CT Pelvis & abdomen with contrast – Janet off next week phone Radiology direct Wed onwards!
28-Feb-2011 – CALLED Janet – CT Scan booked !
03-Mar-2011 – 12:30hrs. Neville Hall – Radiology – CT Scan –
17-Mar-2011 – 11:45hrs. Gwent – Adam CARTER – Lee came with me as I had a feeling this was NOT going to be good news and she deserved to see the pictures, hear the words and ask any questions she wanted asked – it is after all Lee who I am letting down!
WELL I WASN’T WRONG 2 visible tumours on the CT Scan in the lower abdomen – more details later!
My larger tumour is a bit like this (but this is a Squamous Cell Carcinoma on the skin!!) and just over an inch across and is the nearest lymph node to the site of the tumour on the stub of the ureter residual at the bladder from my original radical nephrectomy in September 2001.
CANCELLED by Emma on phone 22-Mar- 2011. It already seemed an impossibly long time away 😉 31-Mar-2011 –
04-Apr-2011 – 10:10hrs? – Royal Gwent – Full Body Bone Scan
Be in for 09:30hrs. pick up bloods sheet from urology & see phlebotomy FIRST – the Radiography for the full skeletal scan.
06 – Apr-2011 – hrs.? – Royal Gwent (Velindra?) – Dr. Lester to discuss results, treatment & management probable rapid high dosage Chemo.
NO SIGNS of Cancer in the bones! So we move ahead 😉
With a tumour on the uretal stump + tumours in the abdomen + cancerous lymph nodes the prognosis is NOT good, with or without treatment it looks like months only!
14-Apr-2011 – 09:00hrs. Velindre – Nuclear Medicine to test kidney function
Radio Active isotope Injection 2hr. wait then blood samples at 2, 3 & 4 hrs.
18-Apr-2011 – 13:45hrs. Velindre – CONSULTANT’s CLINIC – Out Patients for chemotherapy assessment
20-Apr-2011 – 13:00hrs. Velindre FIRST CHEMOTHERAPY TREATMENT!
outline – chemo 2 doses one The First Wednesday then one the next Wednesday and then a week off forms a ‘cycle’.
I understand I’m having 6 or 8 ‘cycles’ – so that is 18 or 24 weeks!
CANCELLED DUE TO COMPLICATIONS SEE THE BLOG!!
11-May-2011 – 14:00hrs. Velindre CHEMO TREATMENT
18-May-2011 – 14:10hrs. XRay Dept Velindre – SCAN – NO Food for 4hrs. before – 1hr. before 1pt fluid18-May-2011 – 15:00hrs. Velindre CHEMO TREATMENT
?. Velindre – Dr. Lester CLINIC CT scan and the next clinic around the last week of May
01-Jun-2011 – 12:00hrs. Velindre CHEMO TREATMENT
08-Jun-2011 – 15:00hrs. Velindre CHEMO TREATMENT
?. Velindre – Dr. Lester CLINIC
22-Jun-2011 – 14:30hrs. Velindre CHEMO TREATMENT
29-Jun-2011 – 13:00hrs. Velindre CHEMO TREATMENT
?. Velindre – Dr. Lester CLINIC
13-Jul-2011 – 09:30hrs. Velindre CHEMO TREATMENT
20-Jul-2011 – 15:00hrs. Velindre CHEMO TREATMENT
?. Velindre – Dr. Lester CLINIC
03-Aug-2011 – 12:00hrs. Velindre CHEMO TREATMENT
10-Aug-2011 – 15:00hrs. Velindre CHEMO TREATMENT
25-May-2011 – 11:20hrs. Velindre CT SCAN
25-May-2011 – 15:00hrs. Velindre CHEMO TREATMENT [Day 08]
(Not Part of NHS Treatment!)
15-Jun-2011 – 14:00hrs. Velindre CHEMO TREATMENT [Day 08]
RePLAN SEE CLINIC 06-Jun-2011 Results = CLICK HERE
29-Jun-2011 – 13:00hrs. Velindre CHEMO TREATMENT [Day 01]
Time Change – to 12:00hrs.
06-Jul-2011 – 13:30hrs. Velindre CHEMO TREATMENT [Day 08]
20-Jul-2011 – 09:30hrs. Velindre CHEMO TREATMENT [Day 01]
27-Jul-2011 – 12:30hrs. Velindre CHEMO TREATMENT [Day 08]
10-Aug-2011 – 13:30hrs. Velindre CHEMO TREATMENT [Day 01]
17-Aug-2011 – 15:00hrs. Velindre CHEMO TREATMENT [Day 08]
for how it functions CLICK HERE
26-Jun-2011 – 09:50hrs. Velindre – RadioTherapy Planning CLINIC!
11-Jul-2011 – 09:30hrs. Velindre – Radio Therapy Treatment
12-Jul-2011 – 15:00hrs. Velindre – Radio Therapy Treatment on m/c #LA3
13-Jul-2011 – 15:00hrs. Velindre – Radio Therapy Treatment
14-Jul-2011 – 15:00hrs. Velindre – Radio Therapy Treatment
15-Jul-2011 – 15:00hrs. Velindre – Radio Therapy Treatment
18-Jul-2011 – 11:30hrs. Velindre – Radio Therapy Review & Treatment
19-Jul-2011 – 17:15hrs. Velindre – Radio Therapy Treatment
20-Jul-2011 – 11:45hrs. Velindre – Radio Therapy Treatment
21-Jul-2011 – 14:15hrs. Velindre – Radio Therapy Treatment
22-Jul-2011 – 13:30hrs. Velindre – Radio Therapy Treatment
25-Jul-2011 – 10:45hrs. 12:00hrs. (much better 😉 Velindre – MRI Scan
25-Jul-2011 – 15:00hrs. Velindre – Radio Therapy Review & Treatment
26-Jul-2011 – 15:00hrs. Velindre – Radio Therapy Treatment CLICK HERE
27-Jul-2011 – 15:00hrs. Velindre – Radio Therapy Treatment
28-Jul-2011 – 15:00 16:45hrs. Velindre – Radio Therapy Treatment
29-Jul-2011 – 13:45hrs. Velindre – Radio Therapy Treatment
01-Aug-2011 – 14:45 Velindre – Radio Therapy Review & Treatment
02-Aug-2011 – 14:45 Velindre – Radio Therapy Treatment
03-Aug-2011 – 14:45 Velindre – Radio Therapy Treatment
04-Aug-2011 – 14:45 Velindre – Radio Therapy Treatment
05-Aug-2011 – 14:45 Velindre – Radio Therapy Treatment
12-Aug-2011 – 15:15 Velindre – appt.: Dr. Lester re.: MRI Results (CLICK HERE)
14-Oct-2011 – 14:30 Velindre – appt.: Dr. Lester re.: Treatment Outcomes CLICK HERE
31-Oct-2011 – 13:00 Royal Gwent – appt.: Flexi (Flexible Cystoscopy)
07-Dec-2011 – 14:30 Velindre appt.: CT Scan CLICK HERE
09-Dec-2011 – 14:00 Velindre – appt.: Dr. Lester re: Out Patients CLICK HERE
09-Mar-2012 – 13:10 Velindre – appt.: CT Scan CLICKHERE
16-Mar-2012 – 14:30 Velindre – appt.: Dr. Lester re: Out Patients
01-May-2012 – 13:30 Royal Gwent – appt: Flexi (Flexible Cystoscopy)
03-Aug-2012 – Anti Biotics as first step for ‘frank Haematuria’
16-Aug-2012 – 14:15 Royal Gwent – appt.: Flexi (Flexible Cystoscopy)
24-Aug-2012 – 13:40hrs. Royal Gwent – Report starved etc. for theater!
07-Sep-2012 – Biopsy results letter dated 04-Sep-2012 shows ALL CLEAR
14-Sep-2012 – 11:40 Velindre – appt.: CT scan
21-Sep-2012 – 14:00 Velindre – appt.: Dr. Lester re: Out Patients
19-Nov-2012 – HEART ATTACK > Royal Gwent!!
It seems I have NO RIGHT coronary artery thus no supply to its subsidiaries!
22-Nov-2012 – Royal Gwent CCU – Angioplast
Can’t Stent or bypass – Left coronary artery
has provided some additional growth
to try to cover!
23-Nov-2012 – Royal Gwent discharged.
tel: 44 (0)1594 – 528 337
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