08-Jun-2011 – Off for day 01 Chemo on my third cycle DOUBLE HIT!

08-Jun-2011 – Off for day 01 Chemo on my third cycle DOUBLE HIT!

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Hi,

well my bloods were OK on Monday in fact they were ‘spot on’ to quote Lester.

So here we go for another double whammy of Chemo – just as I was starting to feel normal lets have another go at feeling bl”dy awful with mouth ulcers, no energy, despondency and infected teath with abscesses!

Oh Joy 😉

But the rest of the news is far better so whilst you read Alice’s essay above on the >TAB< I’ll see what I can come up with as an update!

Regards,
Greg_L-W.

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I just want to say sorry for copping out at times and leaving Lee and friends to cope!
Any help and support YOU can give her will be hugely welcome.
I do make a lousy patient!

.
If YOU want to follow my fight against Cancer from when it started and I first presented with symptoms see The TAB just below the Header of this Blog. called >DIARY of Cancer< just click and it will give you a long list of the main events in chronological order.
.
Thoughts and comments will be in chronological order in the main blog and can be tracked in the >ARCHIVE< in the Right Sidebar.

You may find the TABS >MEDICAL LINKS< and also >CANCER LINKS< of help.
.
YOU are welcome to call me if you believe I can help in ANY way.
.

Posted by: Greg Lance-Watkins
tel: 01291 – 62 65 62
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20-Apr-2011 – THE DAY HAS COME – CHEMO. DAY ONE!!!

20-Apr-2011 – THE DAY HAS COME – CHEMO. DAY ONE!!!

Hi,

well the day has come!

I can’t say I am not concerned but it would be a huge exageration to claim I’m scared of it – I am anything but as chemo may prove to be my very best friend and save my life – despite all the grave warnings of sickness, hair loss, being ill, feeling terrible and the like – all give you a temperature be it a bit high or a bit low failure leaves you COLD!

So this is the first step to recovery, even if due to the sheer incompetence of the National Ass for Wales management of what was once a National Health Service – and was meant to be just that under the Beverrage Plan until the idiot Aneurin Bevan was given the job of implementing the policy which having failed to understand it – in part from inate stupidity but much as a result of his Champagne Socialist prefferences and idiology not to mention the input of his Marxist wife Jenny Lee.

The result has been that The NHS has become an over managed, mismanaged political football surrounded by Political idiologies and acting through its multi layered Kleptocrtatic QUANGOcracy as little more than a sponge to mop up unemployable quasi socialist middle class management of clearly low grade.

How come I find 3 stories of A&E in a pile of cardboard boxes as a permanent potacabin encampment at The Royal Gwent if it were not for missmanagement?

The huddle of cardboard boxes bolted onto the Velindre Hospital as a CDU (where I have my chemo.) with ramped bits of board to join up the levels on uneven ground. I gather this cardboard city was a temporary measure whilst further facilities were built but 3.1/2 years on there is no sign of the building and the ceilings in the cardboard boxes is buckling and breaking up.

One only ever notices ceilings in Hospital Beds and Honey Moon Suites!

This is a product of The Devolved Irresponsibility of The risibly over styled dump for useless space wasting of The Welsh Assembly Government.

A useless QUANGO in itself – merely a means of rubber stamping EU Directives and bribing yet another army of unemployable lick spittles who have, so I am reliably informed in print by The equally idiotic Lib.Dims. have wasted £1Billion of health SERVICE money in the last 12 months!

Sadly I am not surprised – When you note the huge amount of time, effort and investment that has been put into re-badging The Gwent Hospital Trust as ‘The Aneurin Bevan Hospital Trust’ and kitting out all the nurses in new uniforms and re-liverying all the Hospital and Trust vehicles – Did this help a single patient? Did it clean a single filthy ward? Did it save a single life?

I believe you will find that every question gets an emphatic NO.

However for lack of competent management and utter dishonesty and failure to supply the hospital with the requisite CT Scanner or for that matter manage additional shifts to ensure clinical needs were met – I for one may prove in the long run to have been killed by the self serving utter incompetence of Health Care Wales which sees itself as a job creation and marketing organisation designed to display the incompetence and irrelevance of most forms of Consultancy and Administarion, when particularly exempt from accountability as is too often the case in the feather bedded world of The Snivel Cervants.

Well off to Velindre we left with time to spare expecting to arrive at 12:45hrs. for 13:00hrs. – NO SUCH LUCK!

Just before the Coldra Roundabout the traffic ground to a halt – so we phoned to say we would be late but no idea when the CDU was great and just reassured us it would be OK they would fit us in. As a result of some rather ‘rapid’ driving after we passed the single lorry sitting undamaged in the center lane about 5 miles on, we were a mere 20 minutes late!

No problem we gather as Pharmacy is running 1.1/2 hours behind (A Management problem due to lack of allocation of resources in staff numbers to maintain the right output for clinical need) – IS THERE ANY PART OF THE NHS NOT BEING DESTROYED BY ITS OWN USELESS MANAGEMENT?

Well after much time wasting eventually we set off on the treadmill, so to speak.

Bed allocated and then the tedium of signing my life away admitting I knew the risks and knew this was not a cure and knew etc. etc. etc. and now sign this form.

I kept thinking if they can’t manage to keep the ceiling boards up and house the unit in something more solubrious than a glorified packing case wjhat chance they had a clue what they were doing with the medical treatment!!

Anyway medical steps:

01: Place fist and forarm in a bucket of hot/warm water for 5 minutes to relax and open all the veins (that’ll fool them!)

02: Find a suitable vein on the back of the hand and see if you can make it hurt as you insert a cannula needle:

03: Flush the vein for a few minutes with saline.

04: Switch to a bag of chemo that goes in at 999mg an hour so about 40 minutes!
      The first bag was the Gemcitabine which is using a saline carrier – no effects discomfort or pain

05: Flush the vein for a few minutes with saline.

06: Switch to a second bag of chemo that goes in at 999mg an hour so about 40 minutes!
      The second bag was the Carboplatin which uses a glucose carrier base and is in a black bag cover as it is light sensative (I hope I have these two the right way around! More to the point I hope they did!!!!) – no effects discomfort or pain.

07: Flush the vein for a few minutes with saline.

08: remove needles/cannula & tapes and away to go 😉

09: WELL NOT QUITE!
      More ‘debriefing’ this time with a care packet and warnings that I may have all sorts of dire consequences like sickness & heavy periods!! well that’s what the leaflet says! diarrhoea, flue like symptoms, temperature and durance vile!!
So here is a big bag of specialist anti sickness pills and our phone number 24/7 if you have ANY queries.

Well let the lions into the arena and as a gladiator about to do battle salute the Emperor:
‘Those about to die Salute you Caesar’

It was more convincing in The Colosseum than in a cardboard box set up as a Welsh NHS chemo clinic I’m sure!

Well off home expecting to be ill at any moment and shiver and ache with the ague!

Eventually I went to bed at about 04:00hrs. having waited until I was feeling ill so that I could THEN try to sleep on and sleep through it – but no sign of the ill bit, so I gave up and went to bed!

I do feel sorry for Lee – I have no option but enjoin the battle but she has the onerous task of watching and hoping that all will be well, it must be very scarey for her after more than half of her life with me!

I just want to say sorry for copping out at times and leaving Lee and friends to cope!
Any help and support YOU can give her will be hugely welcome.
I do make a lousy patient!

.
If YOU want to follow my fight against Cancer from when it started and I first presented with symptoms see The TAB just below the Header of this Blog. called >DIARY of Cancer< just click and it will give you a long list of the main events in chronological order.
.
Thoughts and comments will be in chronological order in the main blog and can be tracked in the >ARCHIVE< in the Right Sidebar. You may find the TABS >MEDICAL LINKS< and also >CANCER LINKS< of help.
.
YOU are welcome to call me if you believe I can help in ANY way.
.

Posted by: Greg Lance-Watkins
tel: 01291 – 62 65 62

06-Apr-2011 – I’ve SEEN Dr. LESTER (Specialist) & HAVE THE VERDICT!

06-Apr-2011 – I’ve SEEN Dr. LESTER (Specialist) & HAVE THE VERDICT!

Hi,

with some trepidation Lee and I set out with enough time to be there at about 11:45hrs. for a mid day appointment with Dr. Jason Lester, who is to be my new consultant I gather.

Dr. Jason Lester is a specialist Oncologist on the staff at Velindra – the specialist cancer facility in Cardiff.

As ever not a scrap of parking so now we are running ‘tight’ but I know a back street off of the Permit Parking Zone but in my haste modified the side sill of the car on a near invisible wall on the left below my line of sight – annoying but it is only tin!

Just made it in time to find Dr. Lester was running 15 minutes late!

In we go and Janet and I think Dr. Button also there and met Dr. Lester.

Much more relaxed in manner and easy to chat with – assured me he would tell it like it is etc.

He made a point of including Lee and making sure we understood details etc.

Well it is ‘somewhat’ better news as it is confirmed they could not find trace of cancer in the bones anywhere – it seems the area on my right thoracic spine is still not making sense but is not cancer – an old trauma of some sort? Lester seems certain it is completely unrelated to the cancer, which is a relief.

So the aim is chemotherapy with a possible follow on of Radiotherapy.

Best case scenario is that this shrinks and destroys the cancer and buys time – with no reason against it buying years but in the realisation that chemotherapy as the art is now rarely has a good outcome a second time!

Worst case scenario is that chemo plain doesn’t work and then I have less than 6 months so lets hope it works for me 😉

There is no doubt that cancer concentrates the mind and it is astonishing to think that there are currently around 2 Million people in the UK with cancer at the moment!

The plan of action is that first he needs to know accurately, how efficient my remaining kidney is, this will be done at Velindra within 2 weeks in their nuclear medicine facility.

On the outcome of this he will ajust the dosage of chemo accordingly: I need X amount of chemo for Y hours in the blood stream so if my kidney is tacking toxin out fast I will need a larger dose and vica versa.

The chemo I am to have is Gemcitabine and Carboplatin administered in a drip. The dose and mix is varied but is administered once a week 7 days apart and takes about 1.1/2hrs. the first time and around 45 mins. subsequently and a cycle is two weeks being dosed and one week off.

The aim is to start out with 6 cycles with CT scans to see the progress when Dr. Lester deems apposite.

He is fairly upbeat as I am clearly not one to quit after keeping ‘The Bastard’ at bay for 13 years now and he liked the way I was facing it!! He also felt I had general health on my side but obviously stated there are no guarantees.

That said Lee and I are far more relaxed about it than we have been for a while.

Frankly if The Royal Gwent managers weren’t on a bloody silly ego trip weenie waggling about being ‘clever dick’ Welsh this conversation could have been in mid January but the incompetence of over manning and over managing in the NHS means they have been much too busy making fools of themselves with new names, uniforms and livery for their tiny corner of the NHS to pay attention to the health of patients!

There is a mismatch in supply of radiography and nuclear medicine facilities that would have saved more lives with better funding and better management rather than the management showing their insecurity and inadequacy by wasting time and money on fashion and frippery.

There is every reason to believe that if the Hospital management had been doing their job competently I would have had the result of my biopsy from the op on New Years Eve and the relevant CT scan so that I could have had the tumour on the uretic stub removed with a coin/cuff around it and the bladder resealed by mid January without ANY spread to the lymph glands.

What the clowns in management don’t seem to get their head round is that whilst they make the Trust and the idiots in The National Ass for Wales look good with silly new names and uniforms they have potentially cost a small fortune in treatment that they need not have spent and have had more to invest in health and well being of patients – who cares what they call their trust or what livery they waste money on.

Surely it is a NATIONAL HEALTH SERVICE – not some foolish parochial Welsh life style and fashion industry!!

Mental midgets at the levers of power will eventually destroy the health service as they have so much else in Britain!

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I Have Been Fighting Cancer since 1997 & I’M STILL HERE!
I Have Cancer, Cancer Does NOT Have Me
I just want to say sorry for copping out at times and leaving Lee and friends to cope!
Any help and support YOU can give her will be hugely welcome.
I do make a lousy patient!

.
If YOU want to follow my fight against Cancer from when it started and I first presented with symptoms see The TAB just below the Header of this Blog. called >DIARY of Cancer< just click and it will give you a long list of the main events in chronological order.
.
Thoughts and comments will be in chronological order in the main blog and can be tracked in the >ARCHIVE< in the Right Sidebar.

You may find the TABS >MEDICAL LINKS< and also >CANCER LINKS< of help. . YOU are welcome to call me if you believe I can help in ANY way.
.

Posted by: Greg Lance-Watkins
tel: 01291 – 62 65 62
on: http://GregLanceWatkins.Blogspot.com  
TWITTER: Greg_LW  
Health/Cancer Blog: http://GregLW.blogspot.com  
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