Ever Minded At The Patchy Fog That Hampers Areas Of My Memory It Is Reassuring To Note Chemo Brain Is Now Proven …

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FORMATEver Minded At The Patchy Fog That Hampers Areas Of My Memory It Is Reassuring To Note Chemo Brain Is Now Proven … TO COPY …
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Hi,

Chemo-brain IS real: Scientists discover how cancer treatments damage white matter to cause mental fog

  • More than half of cancer patients treated with chemo experience brain fog 
  • ‘Chemo-brain’ is a recognized phenomenon, but poorly understood
  • Stanford University researchers found that chemo affects three types of cells in the white matter 
  • They also discovered that a drug that may block and reverse these effects 

Scientists have finally begun to work out what exactly ‘chemo-brain’ is – and may have found a way to reverse the brain fog cancer treatment cause, a new study reveals. 

More than half of patients that receive chemotherapy report experiencing a cognitive fog for months and sometimes years after undergoing the intensive cancer treatment, but doctors haven’t really understood what causes this. 

A team of Stanford University scientists, however, have identified chemo’s effects on three different types of brain cells. 

They think that chemo causes a sort of arrested development for some brain cells and blocks the activity of cells that help ensure our brain cells are well-fed with nutrients because the drug triggers an overly-active immune response. 

In their experiments on mice, a drug to quell those immune cells helped to reverse chemo’s cognitive effects, giving the team hope that a treatment could be on the horizon.  

More than half of cancer patients who undergo chemotherapy experience 'brain-fog.' A new study reveals how the drug affects three types of brain cells - and a potential way to reverse it

 

More than half of cancer patients who undergo chemotherapy experience ‘brain-fog.’ A new study reveals how the drug affects three types of brain cells – and a potential way to reverse it

The advent of chemotherapy was a revolution in the treatment of cancer.

Around the time of World War II, the US military’s tests of mustard gas led to the discovery that compound based on mustard gas could combat some cancers. 

Soon thereafter, the predecessor to the now commonly-used methotrexate was discovered. 

Tumors grow when a DNA mutation allows cells to divide and multiply out of control. But methotrexate’s predecessor blocked that DNA from replicating, so it blocked cancer growth, too. 

Chemo’s roots in poisons and warfare are telling. Any chemotherapy is toxic to us – it’s just most toxic to carcinogenic cells.   

And our body responds accordingly. chemo often makes patients nauseous, unable to eat, makes them achy and tired and makes their hair fall out. 

Most worryingly to many cancer patients, chemo often comes with a decline in cognitive function that can last far longer than the treatments – or even the cancers, in some cases – themselves do. 

Chemo-brain was once dismissed as a wive’s tale. 

Even the world-renowned Mayo Clinic still calls the term ‘misleading’ and says that it is ‘unlikely that chemotherapy is the sole cause of concentration and memory problems in cancer survivors. 

We are at last beginning to understand what role it does play, however. 

The Stanford researchers focused on the neuron-supporting brain cells in the white matter. 

Three particular types seemed implicated in chem-brain: oligodendrocytes, astrocytes and microglia. 

Oligondendrocytes produce myelin, the coating that protects neurons. If these sheaths are damaged incomplete or missing, signals sent between brain cells are liable to interference. Like a radio, the signals might not come through clearly – or at all. 

Astrocytes lay important supporting roles for neurons, making sure that they are running smoothly and getting sufficient nutrition. 

And microglia are the brain’s own personal immune system. 

The researchers gave some mice with cancer chemotherapy, and left the others untreated.   

In the brains of those who had had chemotherapy, the myelin-producing cells never reached maturity, so they couldn’t produce sufficient myelin to protect the neurons. 

As a result, the mice moved more slowly, and had a harder time recalling elements of an environment that should  have been familiar to them. 

Even when they were injected with cells that would become oligondendrocytes from healthy mice, the cells got stuck in a state of arrested development in the chemo-treated mice’s brains, suggesting it was something about the toxicity of the brain environment that was interfering with this process. 

On the other hand, chemo seemed to supercharge the brain’s immune cells. The microglia were ‘persistently activated’ for at least six months after chemo was administered. 

They were on the defensive, behaving as if there was an infection or other pathogen to fight off, which likely meant prioritizing defensive action over other functions like nutrition. 

Indeed, the overactivity in the microglia interfered with the astrocytes, and the neurons struggled to get enough nutrition, which could be an additional cause of brain-fog. 

Remarkably, the Stanford researchers discovered that they could use a drug that attacked the microglia to restore the balance between them and the nutrient-feeding cells – reversing the cognitive effects of the chemo. 

‘The biology of this disease really underscores how important intercellular crosstalk is,’ lead study author and Stanford neurologist Dr Michelle Monje said. 

‘In addition to existing symptomatic therapies – which many patients don’t know about – we are now homing in on potential interventions to promote normalization of the disorders induced by cancer drugs. 

‘There’s real hope that we can intervene, induce regeneration and prevent damage in the brain.’   

To view the original article CLICK HERE

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Regards,
     Greg_L-W
Greg Lance-Watkins
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I Have Been Fighting Cancer since 1997 & I’M STILL HERE!
I Have Cancer, Cancer Does NOT Have Me
I just want to say sorry for copping out at times and leaving my wife Lee and friends to cope!
Any help and support YOU can give her will be hugely welcome.
I do make a lousy patient!

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If YOU want to follow my fight against Cancer from when it started and I first presented with symptoms in 1998 see The TAB at the Header of this Blog. called >DIARY of Cancer ….< just click and it will give you a long list of the main events in chronological order, many linked to specific blog postings. . Later in the sequence of my experiences with cancer you will note that I introduce some results and events most probably linked with cancer such as enlarged & damaged Prostate and a consequential Heart Attack leaving me with no right coronary artery! . I have also included numerous articles and anecdotes regarding health – primarily related to cancer, prostate and heart conditions – FYI! . Thoughts, articles and comments will be in chronological order in the main blog and can be tracked in the >ARCHIVE< in the Left Sidebar. . You may find the TABS >MEDICAL LINKS< and also >CANCER LINKS< of help, also many of the links in articles and >HOT LINKS< in the Sidebar.
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YOU are welcome to call me, minded that I am NOT medically trained, if you believe I can help you in ANY way. .

Regards,
Greg_L-W.

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Posted by: Greg Lance-Watkins
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Things Change – After 66 Years!

Things Change – After 66 Years!
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So 26-Jan has come around again!


This year sees me weigh in at 66!


After first presenting with the symptoms in November 1998 and then having a radical nephrectomy (kidney removal) due to cancer in September 2001 I guess I didn’t expect to get this far!


After MRSA, numerous minor ops for bladder cancer New Years eve 2010 saw me on an operating table again – A ‘students dream New Year’s Eve‘ – Flat on my back surrounded by nurses and high on drugs!


It was fairly obvious the disease had moved on and eventually after the shambolic incompetence of The NHS under Welsh management, more interested in vanity projects and political showboating, at the end of March I finally received the diagnosis of tumours in the abdomen and lymph system!!


Yes due to the utter incompetence of the NHS in Wales it had taken 3 months to organise an urgent scan in a known case of metastatic cancer and provide a result!!


Prognosis was about 3 months!


So I opted for high dosage Chemotherapy followed by about a month of daily dosage Radio Therapy (Radiation Treatment!).


Well a marriage, a home move and much more I would ESPECIALLY like to thank Dr. Lester and his team – without whom I would NOT be here. Gerald and Carol for their incredible support and of course Lee who after 26 years together I have finally married!


When you consider that when I was born in 1946 Britain and her allies had just won a World War and there were just under 2 Billion people on the planet.


2012 has arrived and we seem to have lost a war and we are now governed with absolutely no meaningful pretence of democracy by our Continental enemies and have all but abandoned our allies, we have still found ourselves heavily in debt but this time for rather less honourable reasons as a result of economic illiteracy of our own utterly incompetent and seeminly malign Labour Government and with very little light at the end of the tunnel – not least of all due to a rise in world population just before Christmas to over 7 Billion.


That is not all that has changed as you will note from when I was 9, 2 years before I flew to Singapore alone and found myself embroilled in The Suez crisis and stranded in Ankara!:


Comments made in the year 1955!


I’ll tell you one thing, if things keep going the way they are, it’s going to be impossible to buy a week’s groceries for $10.00.

Have you seen the new cars
coming out next year? It won’t be long before $2,000.00 will only buy a used one.

Did you hear the post office is
thinking about charging 4 cents just to mail a letter.

If they raise the minimum wage
to $1.00, nobody will be able to hire outside help at the store.

When I first started driving, who
would have thought gas would someday cost 25 cents a gallon. Guess we’d be better off leaving
the car in the garage.



I’m afraid to send my kids to the
movies any more. Ever since they let Clark Gable get by with saying DAMN in GONE WITH THE WIND, it seems every new movie has either HELL or DAMN in it.



I read the other day where some
scientist thinks it’s possible to put a man on the moon by the end of the century. They even have some fellows they call astronauts preparing for it down in Texas .


Did you see where some baseball
player just signed a contract for $50,000 a year just to play ball? It wouldn’t surprise me if someday they’ll be making more than the President.

I never thought I’d see the day
all our kitchen appliances would be electric. They’re even making electric typewriters now.

It’s too bad things are so tough
nowadays. I see where a few married women are having to work to make ends meet.

It won’t be long before young
couples are going to have to hire someone to watch their kids so they can both work.

I’m afraid the Volkswagen car
is going to open the door to a whole lot of foreign business.

Thank goodness I won’t live to see the day
when the Government takes half our income in taxes. I sometimes wonder if we are
electing the best people to government.

The fast food restaurant is
convenient for a quick meal, but I seriously doubt they will ever catch on.

There is no sense going on short
trips anymore for a weekend. It costs nearly $2.00 a night to stay in a hotel.

No one can afford to be sick
anymore. At $15.00 a day in the hospital, it’s too rich for my blood.



If they think I’ll pay 30 cents for a haircut, forget it.

“In politics, stupidity is not a handicap.” 
Napoleon Bonaparte (1769-1821), 

Regards,
Greg L-W.

for all my contact details &amp; Blogs: CLICK HERE  

British Politicians with pens and treachery, in pursuit of their own agenda and greed, have done more damage to the liberty, freedoms, rights and democracy of the British peoples than any army in over 1,000 years.

The disastrous effects of British politicians selling Britain into the thrall of foreign rule by the EU for their own personal rewards has damaged the well-being of Britain more than the armies of Hitler and the Franco – German – Italian axis of 1939 – 1945.

Posted by: Greg Lance-Watkins
tel: 01594 – 528 337
of: Greg_L-W@BTconnect.com  
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 .
 Please Be Sure To
My Blogs
To Spread The Facts World Wide To Give Others HOPE
I Have Been Fighting Cancer since 1997 & I’M STILL HERE!
I Have Cancer, Cancer Does NOT Have Me
I just want to say sorry for copping out at times and leaving Lee and friends to cope!
Any help and support YOU can give her will be hugely welcome.
I do make a lousy patient!

.
If YOU want to follow my fight against Cancer from when it started and I first presented with symptoms see The TAB just below the Header of this Blog. called >DIARY of Cancer< just click and it will give you a long list of the main events in chronological order.
.
Thoughts and comments will be in chronological order in the main blog and can be tracked in the >ARCHIVE< in the Right Sidebar.

You may find the TABS >MEDICAL LINKS< and also >CANCER LINKS< of help.
.
YOU are welcome to call me if you believe I can help in ANY way. .

Posted by: Greg Lance-Watkins
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08-Jun-2011 – Off for day 01 Chemo on my third cycle DOUBLE HIT!

08-Jun-2011 – Off for day 01 Chemo on my third cycle DOUBLE HIT!

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Hi,

well my bloods were OK on Monday in fact they were ‘spot on’ to quote Lester.

So here we go for another double whammy of Chemo – just as I was starting to feel normal lets have another go at feeling bl”dy awful with mouth ulcers, no energy, despondency and infected teath with abscesses!

Oh Joy 😉

But the rest of the news is far better so whilst you read Alice’s essay above on the >TAB< I’ll see what I can come up with as an update!

Regards,
Greg_L-W.

 Please Be Sure To
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I just want to say sorry for copping out at times and leaving Lee and friends to cope!
Any help and support YOU can give her will be hugely welcome.
I do make a lousy patient!

.
If YOU want to follow my fight against Cancer from when it started and I first presented with symptoms see The TAB just below the Header of this Blog. called >DIARY of Cancer< just click and it will give you a long list of the main events in chronological order.
.
Thoughts and comments will be in chronological order in the main blog and can be tracked in the >ARCHIVE< in the Right Sidebar.

You may find the TABS >MEDICAL LINKS< and also >CANCER LINKS< of help.
.
YOU are welcome to call me if you believe I can help in ANY way.
.

Posted by: Greg Lance-Watkins
tel: 01291 – 62 65 62

07-May-2011 – YELLOW CARD – Bored, Knackered and Uncomfortable

07-May-2011 – YELLOW CARD – Bored, Knackered and Uncomfortable

DID I SAY I HAVE CANCER & I’m ON CYTOTOXIC CHEMOTHERAPY 
with a platelet count of 34 that is falling and clear signs of infection!

Hi,

I’m sitting in a consulting room in The Royal Gwent Hospital where I arrived at just after 20:00hrs. yesterday and it is now about 05:30hrs. and in a disgusting display of utter incompetence of the management structure of The NHS under the devolved irresponsibility of the super annuated Welsh Council they STILL have failed to find a bed for me!

This is where I have been since I arrived for urgent medical attention at the request of my Consultant’s staff at Velindre 9.1/2+hrs. ago:

In view of the circumstances and the state of my health how do YOU feel about the chair I spent the night in!

I was unable to sleep past 09:30hrs. on the 06-May02011 after about 4.1/2hrs. sleep so that is over 20hrs. without sleep so far and so far one coffee, no food and iced water from the cooler in reception since about18:00hrs.

Did I tell you I’m here ‘cos I’m not well and my Consultant’s team believes I need prompt and competent attention – perhaps someone can tell me how this level of abuse by the management of the NHS can be other than damaging to my health and possibilities of survival?

So in boredome lets consider The Velindre NHS Trust YELLOW CARD!

I will scan the card when I get home but here is the text:

Front Cover:

VELINDRE NHS TRUST

I am a patient on Cytotoxic Chemotherapy

NANE DETAILS NUMBER etc.

DRUGS: CARBOPLATIN & GEMCITABINE

CONSULTANT: LESTER

If you are unwell or are admitted to
another hospital for any reason contact
Velindre Cancer Centre aany time day or night

Telephone: 029 2061 5888 and ask for the
nurse with the chemotherapy pager.

Inside Front Cover:
Information for patients

You must contact Velindre Cancer Centre
immediately any time day or night if:

You have a temperature of 37.5C or above

flu like symptoms, chesty cough or any
other signs of infrction

shivering episodes

unusual bruising or bleeding

vomiting more than once in 24 hours

four or more bowel movements, or 4
episodes of diarrhoea in 24 hours

mouth ulcers or soreness that stops
you eating or drinking

you are admitted to another hospital
for any reason

Information for healthcare staff:

This is a Velindre patient receiving chemotherapy
treatment and is at risk of

Neutropenic sepsis

Treat all infective episodes seriously and promptly
with antibiotics.

If febrile will need urgent FBC and blood cultures.

If signs of shock or obviously unwell:

Do Not wait for blood results, administer IV
antibiotics as per neutopenia protocol:

http://www.wales.nhs.uk/sites3/home.cfm?OrgID=357

commence IV fluids

take serum lactate, glucose and clotting screen

monitor urine output – may need catheter and

hourly urine measurement

adminsiter 100% oxygen

consider referral to critical team

Contact Velindre immediately if this patient
is admitted for any reason. We have 24 hour
access to medical records and oncologist advice.

Telephone: 029 2061 5888 and ask for the nurse
with the chemotherapy pager.

The back page:
this page is not very relevant as it is just contact addresses that Velindre Cytotoxic chemotherapy patients might need!

Well its 04:30hrs.

No bed no antibiotics and I’ve just had a chat with one of the nursing staff and voiced my concern just think what The Yellow Card says!

Last Monday I came in and YES I had a very minor infection but a judgement was taken that my bloods were OK to cope with this but to keep an eye on it at home and monitor my temperature.

Clearly SOMETHING was going wrong sufficient for Velindre to require hands on checking and care – my platlet counts are down to 34 when norm is 150 to 300 – I have clear signs of infection showing in the blood and a Consultant on the phone is happy to let my infection rise and do nothing until after more bloods sometime in the future without checking with Velindre, without clear explanation and without seeing me!

This does look like crass irresponsibility and at this stage I may well take some very serious convincing that this is NOT utter irresponsibility.

I just want to say sorry for copping out at times and leaving Lee and friends to cope!
Any help and support YOU can give her will be hugely welcome.
I do make a lousy patient!

.
If YOU want to follow my fight against Cancer from when it started and I first presented with symptoms see The TAB just below the Header of this Blog. called >DIARY of Cancer< just click and it will give you a long list of the main events in chronological order.
.
Thoughts and comments will be in chronological order in the main blog and can be tracked in the >ARCHIVE< in the Right Sidebar.

You may find the TABS >MEDICAL LINKS< and also >CANCER LINKS< of help. . YOU are welcome to call me if you believe I can help in ANY way.
.

Posted by: Greg Lance-Watkins
tel: 01291 – 62 65 62

27-Apr-2011 – 11:00hrs. Velindre FOR FULL BLOODS!

27-Apr-2011 – 11:00hrs. Velindre FOR FULL BLOODS!

Giant Platelets on a blood smear (40x).Image of Platelets (purple) via Wikipedia

Hi,

well it was schlep off to Velindre – initially I thought at a sensible time!Well I suppose most people are OK with mornings but I tend to write at night once the phone has died down so I am not very good on mornings!

The appointment for today started out as chemo at 15:00hrs. which seemed perfectly reasonable – no rush to get up, a leisurely shower and when we got around to it a gentle putter down the M4 – OK 32  miles is no big deal but when you start the day feeling dead headed any effort isd so much easier to put off!

Anyway I have to be there at 11:00hrs. for bloods – YES it does take best part of an hour to have them done and then have a coffee whilst we wait, in the canteen (praise be it is very good coffee).

Then saunter over to The CDU cardboard box and check in with the staff to be sure the results are through so we are now running at about 12:00hrs.

No problems as I gather all my various blood checks are seemingly OK – Woopy firstly I have it confirmed they haven’t killed me yet with this toxin they are poring into me – SECONDLY I can have my next dose of chemo. I have this, sadly all too rational fear that they may say – Sorry the response on the bloods, or what ever, is wrong we have to stop the chemo!

I wonder if that would be a death sentence!!

Well I’m OK this time although the platelet count is a bit low [Platelets, or thrombocytes (from Greek θρόμβος, “clot” and κύτος, “cell”)] – so Lee and I decide to have lunch whilst we wait for the chemo to be made up to the right dose for me in the Pharmacy.

Lunch was actually very good value although eating anything is becoming ever more of an eye watering experience due to the increasingly sore mouth ulcers which are well under way – particularly inside lower lip, inside lower jaw and on either side of my tongue and across the back of the tongue.

I gather this is all part of the fun of chemo! FOR SOME PEOPLE.

Please don’t think that if you have been prescribed chemo your symptoms will be the same as mine:
FIRSTLY:
There are many types of chemo and they come in different dosages.
SECONDLY:
Chemo is NOT an exact science and everyone seemingly reacts differently to the drug and the dosage.

So I may well have mouth ulcers whilst another person has hair loss, headaches or nose bleed.

I gather nausea is fairly standard but I’ve avoided that SO FAR and lethargy is also standard – which explains my feeling tired.

Lunch for me was a generous prawn salad (COOL & just about swallowable!) Lee had an equally generous and well filled baggette (I wish, but the crust would have been like a mouth full of razor blades – the salad was sore enough!).

Pleasant as the canteen is and friendly as the staff and other diners are it is not somewhere I would by choice spend almost 3 hours trying to pass the time!

Well its just gone 14:00hrs so back to CDU.

I just want to say sorry for copping out at times and leaving Lee and friends to cope!
Any help and support YOU can give her will be hugely welcome.
I do make a lousy patient!

.
If YOU want to follow my fight against Cancer from when it started and I first presented with symptoms see The TAB just below the Header of this Blog. called >DIARY of Cancer< just click and it will give you a long list of the main events in chronological order.
.
Thoughts and comments will be in chronological order in the main blog and can be tracked in the >ARCHIVE< in the Right Sidebar.

You may find the TABS >MEDICAL LINKS< and also >CANCER LINKS< of help.
.
YOU are welcome to call me if you believe I can help in ANY way.
.

Posted by: Greg Lance-Watkins
tel: 01291 – 62 65 62

22-Apr-2011 – GREAT EXPECTATIONS – A GOOD DAY!

22-Apr-2011 – GREAT EXPECTATIONS – A GOOD DAY!

Hi,

Well what a strange day chemo. + ONE!!

I took none of the tablets because I felt OK yesterday and I was convinced it was going to come in like a storm across an oily sea – to hit me with six tons of ‘sh*t’ and the aim was as soon as symptoms came on I would grab the pills and take myself to bed to sleep off the effect IF possible.

NOTHING!

Eventually I went to bed and it was almost 5am.
When I woke I was still OK so I got up at around 11:30hrs. and had a pint of yoghurt and honey and a large coffee.

I still feel remarkably OK and still no tablets.

Eventually I rang the Tenovus help line (they are the local equivalent of Macmillan Nursing).

A great chat with Mary, who is oncology nursing background. Her comments on the tablets was she couldn’t advise but she could inform:
‘the perceived wisdom amongst the nurses is that one should take all the tablets as a prophylacti’

Obviously they have been missing out on their own advice as clearly at least two of the chemo nurses hadn’t been taking their pills and are expecting babies imminently!!

She also said:
‘The Pharmacy on the other hand advise that one should only take the tablets if needed’.

It was not fence sitting on Mary’s behalf but informative and when asked what she would do in my position where I almost never take tablets as what toxins we put into the body our kidneys have to take out and now I’m down to one I am acutely aware that I don’t have a spare!

Mary’s comment was:
‘she would NOT take the tablets but be aware they were ther and take them IF sickness started but in the realisation there may be a period of feeling very sick before the dosage became systemic as a suppressor’.

I have therefore ONLY taken the one 8mg. ONDANSETRON tablet that was to be taken within 24 hours of the chemo. the rest I hope can stay in the care pack!

My temperatuire has been 35.7 & 35.9 on the two occasions I have taken it and two more meals later I still feel OK although Lee thinks I may be a bit off colour as I’m a bit yellowy which would imply my kidney is struggling and also the flushed look is not temperature so I checked my BP at 23:00hrs. and it is a bit high BIT!!! 140/79 which is VERY high for me I’m usually around 120/75 with a pulse of about 67 but it is currently P71.

Classification of blood pressure for adults
Category systolic, mmHg diastolic, mmHg

Hypotension

< 90

< 60

Normal

90 – 119

60 – 79

Prehypertension

120 – 139

or 80 – 89

Stage 1 Hypertension

140 – 159

or 90 – 99

Stage 2 Hypertension

160 – 179

or 100 – 109

Hypertensive Crisis

≥ 180

or ≥ 110

Nothing alarming and now it is time for a shower and off to bed as it is 02:20hrs.

Let’s hope tomorrow is also symptom free but I am glad to be 36hrs. on and so far so good!

FINALLY FOR TONIGHT:

We really do appreciate the many phone calls – literally from around the world but also from all over Britain they are so very supportive and all a bit embarrassing!

Also thanks for the fantastic flowers to Peter & Christine (Christine assures me that Interflora wouldn’t send just one dandelion for me so she had this wonderfull bunch for LEE instead!) – they are still as fresh as the day they arrived a week later!

Also thanks to Wendy & Andrew, Jean & Harry and others for the cards.

I was sorry to miss Pat’s birthday on the 19th. & Diana’s on the 21st. but I did at least remember Niall’s on the 20th. Many Happy Returns in good health and my VERY best wishes to Pat’s husband Dave who we have known for years as Dave has cancer of the neck and the battle is proving pretty tough with Radio Therapy after his chemo. it is all conspiring to kill his appetite and make him feel fairly rotten.

I just want to say sorry for copping out at times and leaving Lee and friends to cope!
Any help and support YOU can give her will be hugely welcome.
I do make a lousy patient!

.
If YOU want to follow my fight against Cancer from when it started and I first presented with symptoms see The TAB just below the Header of this Blog. called >DIARY of Cancer< just click and it will give you a long list of the main events in chronological order.
.
Thoughts and comments will be in chronological order in the main blog and can be tracked in the >ARCHIVE< in the Right Sidebar. You may find the TABS >MEDICAL LINKS< and also >CANCER LINKS< of help.
.
YOU are welcome to call me if you believe I can help in ANY way.
.

Posted by: Greg Lance-Watkins
tel: 01291 – 62 65 62

20-Apr-2011 – THE DAY HAS COME – CHEMO. DAY ONE!!!

20-Apr-2011 – THE DAY HAS COME – CHEMO. DAY ONE!!!

Hi,

well the day has come!

I can’t say I am not concerned but it would be a huge exageration to claim I’m scared of it – I am anything but as chemo may prove to be my very best friend and save my life – despite all the grave warnings of sickness, hair loss, being ill, feeling terrible and the like – all give you a temperature be it a bit high or a bit low failure leaves you COLD!

So this is the first step to recovery, even if due to the sheer incompetence of the National Ass for Wales management of what was once a National Health Service – and was meant to be just that under the Beverrage Plan until the idiot Aneurin Bevan was given the job of implementing the policy which having failed to understand it – in part from inate stupidity but much as a result of his Champagne Socialist prefferences and idiology not to mention the input of his Marxist wife Jenny Lee.

The result has been that The NHS has become an over managed, mismanaged political football surrounded by Political idiologies and acting through its multi layered Kleptocrtatic QUANGOcracy as little more than a sponge to mop up unemployable quasi socialist middle class management of clearly low grade.

How come I find 3 stories of A&E in a pile of cardboard boxes as a permanent potacabin encampment at The Royal Gwent if it were not for missmanagement?

The huddle of cardboard boxes bolted onto the Velindre Hospital as a CDU (where I have my chemo.) with ramped bits of board to join up the levels on uneven ground. I gather this cardboard city was a temporary measure whilst further facilities were built but 3.1/2 years on there is no sign of the building and the ceilings in the cardboard boxes is buckling and breaking up.

One only ever notices ceilings in Hospital Beds and Honey Moon Suites!

This is a product of The Devolved Irresponsibility of The risibly over styled dump for useless space wasting of The Welsh Assembly Government.

A useless QUANGO in itself – merely a means of rubber stamping EU Directives and bribing yet another army of unemployable lick spittles who have, so I am reliably informed in print by The equally idiotic Lib.Dims. have wasted £1Billion of health SERVICE money in the last 12 months!

Sadly I am not surprised – When you note the huge amount of time, effort and investment that has been put into re-badging The Gwent Hospital Trust as ‘The Aneurin Bevan Hospital Trust’ and kitting out all the nurses in new uniforms and re-liverying all the Hospital and Trust vehicles – Did this help a single patient? Did it clean a single filthy ward? Did it save a single life?

I believe you will find that every question gets an emphatic NO.

However for lack of competent management and utter dishonesty and failure to supply the hospital with the requisite CT Scanner or for that matter manage additional shifts to ensure clinical needs were met – I for one may prove in the long run to have been killed by the self serving utter incompetence of Health Care Wales which sees itself as a job creation and marketing organisation designed to display the incompetence and irrelevance of most forms of Consultancy and Administarion, when particularly exempt from accountability as is too often the case in the feather bedded world of The Snivel Cervants.

Well off to Velindre we left with time to spare expecting to arrive at 12:45hrs. for 13:00hrs. – NO SUCH LUCK!

Just before the Coldra Roundabout the traffic ground to a halt – so we phoned to say we would be late but no idea when the CDU was great and just reassured us it would be OK they would fit us in. As a result of some rather ‘rapid’ driving after we passed the single lorry sitting undamaged in the center lane about 5 miles on, we were a mere 20 minutes late!

No problem we gather as Pharmacy is running 1.1/2 hours behind (A Management problem due to lack of allocation of resources in staff numbers to maintain the right output for clinical need) – IS THERE ANY PART OF THE NHS NOT BEING DESTROYED BY ITS OWN USELESS MANAGEMENT?

Well after much time wasting eventually we set off on the treadmill, so to speak.

Bed allocated and then the tedium of signing my life away admitting I knew the risks and knew this was not a cure and knew etc. etc. etc. and now sign this form.

I kept thinking if they can’t manage to keep the ceiling boards up and house the unit in something more solubrious than a glorified packing case wjhat chance they had a clue what they were doing with the medical treatment!!

Anyway medical steps:

01: Place fist and forarm in a bucket of hot/warm water for 5 minutes to relax and open all the veins (that’ll fool them!)

02: Find a suitable vein on the back of the hand and see if you can make it hurt as you insert a cannula needle:

03: Flush the vein for a few minutes with saline.

04: Switch to a bag of chemo that goes in at 999mg an hour so about 40 minutes!
      The first bag was the Gemcitabine which is using a saline carrier – no effects discomfort or pain

05: Flush the vein for a few minutes with saline.

06: Switch to a second bag of chemo that goes in at 999mg an hour so about 40 minutes!
      The second bag was the Carboplatin which uses a glucose carrier base and is in a black bag cover as it is light sensative (I hope I have these two the right way around! More to the point I hope they did!!!!) – no effects discomfort or pain.

07: Flush the vein for a few minutes with saline.

08: remove needles/cannula & tapes and away to go 😉

09: WELL NOT QUITE!
      More ‘debriefing’ this time with a care packet and warnings that I may have all sorts of dire consequences like sickness & heavy periods!! well that’s what the leaflet says! diarrhoea, flue like symptoms, temperature and durance vile!!
So here is a big bag of specialist anti sickness pills and our phone number 24/7 if you have ANY queries.

Well let the lions into the arena and as a gladiator about to do battle salute the Emperor:
‘Those about to die Salute you Caesar’

It was more convincing in The Colosseum than in a cardboard box set up as a Welsh NHS chemo clinic I’m sure!

Well off home expecting to be ill at any moment and shiver and ache with the ague!

Eventually I went to bed at about 04:00hrs. having waited until I was feeling ill so that I could THEN try to sleep on and sleep through it – but no sign of the ill bit, so I gave up and went to bed!

I do feel sorry for Lee – I have no option but enjoin the battle but she has the onerous task of watching and hoping that all will be well, it must be very scarey for her after more than half of her life with me!

I just want to say sorry for copping out at times and leaving Lee and friends to cope!
Any help and support YOU can give her will be hugely welcome.
I do make a lousy patient!

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If YOU want to follow my fight against Cancer from when it started and I first presented with symptoms see The TAB just below the Header of this Blog. called >DIARY of Cancer< just click and it will give you a long list of the main events in chronological order.
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Thoughts and comments will be in chronological order in the main blog and can be tracked in the >ARCHIVE< in the Right Sidebar. You may find the TABS >MEDICAL LINKS< and also >CANCER LINKS< of help.
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YOU are welcome to call me if you believe I can help in ANY way.
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Posted by: Greg Lance-Watkins
tel: 01291 – 62 65 62