& My Flexi Result!

& My Flexi Result!
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Hi,

so today, as ever with some trepidation it was off to The Royal Gwent for a Flexible Cystoscopy – this time was in the urology center where they have larger and clearer HD VDU screens.

The increased high definition showed up many of the scars from previous resections and clearly showed the resection of New Year’s Eve, once the position of the ureter stump was found (stump of course as mine was removed when I had my left kidney removed in 2001).

The site of that resection, which had started out as a T3, was looking very healthy and similar to the surrounding wall of the bladder, which was very reassuring.

 To enlarge the pic. double click it

I’m not sure who was most surprised at just how clear my bladder was so scarring not withstanding it was an all clear.

I do have a feeling that if I entered the middle lobe of my prostate in a competition it might just win at least a placing that size! However as yet it is no serious problem and with all the future flexis the opportunity is there to check it every 6 months or so.

Then a visit to the urology unit where I have now been a patiet for 13 years!!!! Many changes of staff as a number of the original staff have now retired but the genuine interest and humour of those who have watched my progress and helped to keep me alive is a huge encouragement when you consider around 6,500 people a year are diagnosed with Kidney Cancer with a morbidity rate of around 5,000+ within the 5 years that classify as cured if you can last past the 5 years!

Bladder Cancer is also more prevalent than many believe with over 10,000 diagnosed a year in Britain:

Standardised (AS) Incidence Rates per 100,000 Population,  UK, 2008

England Wales Scotland Northern Ireland United Kingdom
Male Cases 6,322 432 487 149 7,390
Crude Rate 25.0 29.6 19.5 17.1 24.5
AS Rate 19.1 20.3 14.8 15.6 18.8
AS Rate – 95% LCL* 18.7 18.4 13.5 13.1 18.3
AS Rate – 95% UCL* 19.6 22.2 16.2 18.1 19.2
Female Cases 2,469 152 265 59 2,945
Crude Rate 9.4 9.9 9.9 6.5 9.4
AS Rate 5.6 5.6 5.7 4.6 5.6
AS Rate – 95% LCL* 5.4 4.7 5.0 3.4 5.4
AS Rate – 95% UCL* 5.8 6.5 6.3 5.8 5.8
Persons Cases 8,791 584 752 208 10,335
Crude Rate 17.1 19.5 14.5 11.7 16.8
AS Rate 11.6 12.1 9.6 9.3 11.4
AS Rate – 95% LCL* 11.4 11.1 8.9 8.1 11.2
AS Rate – 95% UCL* 11.8 13.1 10.3 10.6 11.6
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The Morbidity Rate is not as encouraging as one might wish!

The number of bladder cancer deaths and mortality rates for the constituent countries in the UK are shown.

So I guess on this alone my survival is unusual and then considering the TCC Tumours in the abdomen and the cancerous Lymph Node(s) the stats have been against me with chemo and Radio Therapy – I have been incredibly fortunate!

Consider Steve Povey who I knew of and had spoken to a couple of times – at 53 he was diagnosed with lung cancer in August and died last weekend CLICK HERE
I also note that Robin Page, a friend of mine with prostate cancer who you may know from his days on ‘One Man & His Dog’, his oncologist who is in her 40s ignored a pain in her lower back and is now facing serious spread opf cancer which is now being treated but with a poor prognosis I understand.
We all know all too many who are facing the challenges of cancer and I hope they will find they have the good fortune I have had and the team that has supported my fight against this pernicious collection of diseases!
Good Luck – At the moment I seem to be clear and long may it last 🙂

ANYONE wanting help or a chat – an amateur view from someone who has been there, got the TShirt and been subject of the video do feel free to contact me if you feel I might be able to informally help!
.

 Please Be Sure To
My Blogs
To Spread The Facts World Wide To Give Others HOPE
I Have Been Fighting Cancer since 1997 & I’M STILL HERE!
I Have Cancer, Cancer Does NOT Have Me
I just want to say sorry for copping out at times and leaving Lee and friends to cope!
Any help and support YOU can give her will be hugely welcome.
I do make a lousy patient!

.
If YOU want to follow my fight against Cancer from when it started and I first presented with symptoms see The TAB just below the Header of this Blog. called >DIARY of Cancer< just click and it will give you a long list of the main events in chronological order.
.
Thoughts and comments will be in chronological order in the main blog and can be tracked in the >ARCHIVE< in the Right Sidebar. You may find the TABS >MEDICAL LINKS< and also >CANCER LINKS< of help.
.
YOU are welcome to call me if you believe I can help in ANY way. .

Posted by: Greg Lance-Watkins
tel: 01291 – 62 65 62
on: http://GregLanceWatkins.Blogspot.com  
TWITTER: Greg_LW
Health/Cancer Blog: http://GregLW.blogspot.com  
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14-Oct-2011 – appt.: Dr. Lester re.: Treatment Outcomes

14-Oct-2011 – appt.: Dr. Lester re.: Treatment Outcomes

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Hi,

this being the first serious roundup of the outcome of my chemo & radio therapy – neither of which come with much of a track record of certainty – I would be a fool to try to claim I was unconcerned!

I have had a bit of ongoing discomfort which has proved worrying – well worrying for me! A chat with my St. David’s Nurse Nairn (Sort of Macmillan Nursing for Monmouthshire and a bit of Wales where they also run charity shops to fund hospice care etc.) Anyway Nairn was right I think, when she said it was most likely to be part of the aftermath of the treatment and if it was more challenging (mets. or tumour growth) by now it would be more vigerous and likely to have more notable symptoms ‘take some CoCodomol and see if that helps’ – so I didn’t bother.

One aspect of the main wound hernia and the absolute lack of stomach muscles of any use is that it has led to standard male patern groin hernia which is not of help! In fact standing still or lifting becomes very uncomfortable and I have definitely been doing too much lifting recently!

Anyway, the day for clinic caught up with me faster than I had expected!

Jason Lester was running almost on time and he was VERY reassuring as he felt I had fared very well and better than he had expected ‘without so much as having the good grace to be ill’!

Lester feels there is every reason to be optimistic indicating that had the cancer not been destroyed at this stage there was every reason that I would be expected to be considerably more unwell and even not have made it this far!

Lester wants to seem me again just before Christmas as he intends to keep a close eye for the future – probably an element of astonishment and many might think in masochism!!!

So the plan is a Flexi at The Royal Gwent and a CT scan Velindre before seeing Jason Lester for the next check-up.

One thing that he felt of paerticular value was a meeting with his Radiology Consultant and they studied the MRI scan I had had. There is no doubt that I have degenerative spinal damage but that my spine shows no sign of any cancerous invasion or damage.

A spin off of the MRI scan was, apparently, that it showed up the lymph system and there is no visibl;e evidence of the cancer in the lymph glands and since it was in one of the glands in April there was every possibility of spread.

I guess I got lucky with a great deal of help from Julian Lester and his team at Velindre!!

Yes of course the cancer is likely to return but time is of value!

Especially after 13 years and so many rounds in this challenge – There are a lot of people who need to see a future and 13 years looks like a lifetime when first diagnosed the longer I can set an example the better the LIFEline for all.

So off to have a full set of bloods done before heading home to give Lee the good news.

 .
 Please Be Sure To
My Blogs
To Spread The Facts World Wide To Give Others HOPE
I Have Been Fighting Cancer since 1997 & I’M STILL HERE!
I Have Cancer, Cancer Does NOT Have Me
I just want to say sorry for copping out at times and leaving Lee and friends to cope!
Any help and support YOU can give her will be hugely welcome.
I do make a lousy patient!

.
If YOU want to follow my fight against Cancer from when it started and I first presented with symptoms see The TAB just below the Header of this Blog. called >DIARY of Cancer< just click and it will give you a long list of the main events in chronological order.
.
Thoughts and comments will be in chronological order in the main blog and can be tracked in the >ARCHIVE< in the Right Sidebar. You may find the TABS >MEDICAL LINKS< and also >CANCER LINKS< of help.
.
YOU are welcome to call me if you believe I can help in ANY way.
.

Posted by: Greg Lance-Watkins
tel: 01291 – 62 65 62
on: http://GregLanceWatkins.Blogspot.com
TWITTER: Greg_LW Health/Cancer 
Blog: http://GregLW.blogspot.com  
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ITEM 05 – FLEXIBLE CYSTOSCOPY

DATE .

 Please Be Sure To

My Blogs
To Spread The Facts World Wide
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 .
Hi,


Flexible Cystoscopy is a method of introducing a camera or instruments into the bladder to facilitate viewing/investigating the condition of the bladder, the visible part of the prostate gland and the two entries from the left and right kidneys.

The procedure is conducted with a cystoscope which can also introduce a number of instruments into the bladder to perform various procedures.


The tube of a flexible cystoscope is approximately the diameter of a large conventional drinking straw snd can be introduced without pain but to reduce discomfort a slightly anaethetising lubricant is used to introduce the cystoscope through the aperture of the urethra – the tube that voids urine from the bladder.


The female urethra is less complex and is only 4-5cms. long (1.5 > 2 inches) that of males is approximately 20cms. in length (8inches) passing through the penis and through the prostate gland into the bladder with a couple of channels joining the urethra for the introduction of semen and ejaculate from the testese and prostate respectively.



You can watch a video almost 7 minutes long explaining the procedures associated with Flexible Cystoscopy if you CLICK HERE
 .
 Please Be Sure To
My Blogs
To Spread The Facts World Wide To Give Others HOPE
I Have Been Fighting Cancer since 1997 & I’M STILL HERE!
I Have Cancer, Cancer Does NOT Have Me
I just want to say sorry for copping out at times and leaving Lee and friends to cope!
Any help and support YOU can give her will be hugely welcome.
I do make a lousy patient!

.
If YOU want to follow my fight against Cancer from when it started and I first presented with symptoms see The TAB just below the Header of this Blog. called >DIARY of Cancer< just click and it will give you a long list of the main events in chronological order.
.
Thoughts and comments will be in chronological order in the main blog and can be tracked in the >ARCHIVE< in the Right Sidebar.
.
You may find the TABS >MEDICAL LINKS< and also >CANCER LINKS< of help. . YOU are welcome to call me if you believe I can help in ANY way.
.

Posted by: Greg Lance-Watkins
tel: 01291 – 62 65 62
on: http://GregLanceWatkins.Blogspot.com  
TWITTER: Greg_LW  
Health/Cancer Blog: http://GregLW.blogspot.com  
Enhanced by Zemanta