18-Apr-2011 – VELINDRE for MY FIRST CONSULTANT CLINIC

18-Apr-2011 – VELINDRE for MY FIRST CONSULTANT CLINIC

Hey ho – a strange event to inflict on Lee’s Aunt Heather on her last full day with us but she wanted to come and see Cardiff before she leaves to fly back to SA tomorrow on the 19:00hrs. Heathrow to Johannesburg flight and then on another 2hrs. to PE.

So we left arriving about 15 minutes early but it took a while to find parking and by the time I had aimed Lee and Heather at the canteen I was about perfect timing for a 13:45hrs. appointment.

First I get sent off to be weighed and measured!! Just how different can I be to Thursday in the same hospital – well it seems I’ve shrunk another inch so when queried I grew it back!!! Weight was almost the same – so I guess I can’t blame gain or loss on Heather’s deserts!!

When I came back to the waiting area Roger & Anne had arrived (his appointment is with Dr. Lester also but at 14:30hrs.) Had it just been Lee and I coming we might well have picked them up en-route as they only live in St. Arvans. They had stopped off for lunch at The Holly Bush carvery and then met Lee and Heather in the canteen by accident over a coffee.

What a riotous life cancer provides!!

Roger has had a bit of a rough time and over the last week had to stop taking his drugs – he is on (was on) 50mg. Sutent – it was making him feel grotty and sleep all the time with no motivation and just depressed – No way to fight cancer, but you can’t fight the drug side effects and he has been very lucky, avoiding Sore Hand & Foot syndrome and the mouth ulcers that often go with Sutent.

Anyway then I was called for yet another set of bloods but R&A were still there when I came out.

A short weight and off to see Dr. Lester – allegedly my kidney function results were excellent even considering I only have one kidney.

He believes that if there is a chance with chemo. I have better odds than most as my body has kept the disease at bay, with some mechanical intervention, for 13 years now and I have no other underlying health issues.

I gather realistic odds are around 5-15% and on that one would hardly bet ones shirt on a racehorse in a field of donkeys but I have every intention of beating the odds – I have to date!

Lester asked if I had any questions and did I understand the chemo. leaflet he gave me last time (lightweight and a bit uninformative springs to mind) I did ask why he had removed one of the pages as look as I might I couldn’t find the Guarantee Page!

I guess it doesn’t work that way 😉

I also asked if it was OK to take pain killers as my back was giving me a lot of pain, unrelated to the cancer.

I’m not sure how to take his answer ;-o apparently as that is the least of the problems take whatever I want!

Later when I told Roger this he related having asked what he should do about his diabetes diet Dr. Lester said eat what you like we will just control the diabetes for you.

Feeling he might be onto a winner Roger asked whether he could drink alcohol having been off of it medically for 3 years.

Dr. Lester is claimed to have paused – looked at him and said you’ve had a piece of gut removed, you’ve had chemo and we have removed a kidney and an adrenal gland and also half your liver and you are on Sutent – what the hell you might as well be half ‘pissed’ – perhaps a little apocryphal but it gave me pause for thought relative to my doubts about pain killers!

Well the last task was to book an appointment for the next clinic which will be 09-May

So that is chemo on Wednesday 20-April then again on 27-April then 04-May BLANK (Two weeks on and one week off!)

I presume that means back on for chemo on 11-May and then again on 18-May and the 25-May off, with a CT scan and the next clinic around the last week of May.

Eventually we left the hospital and I drove Heather all over Cardiff – even stopping to get some pictures of The Millenium Stadium for her to have for John (her husband). Then on to The Bay which really is deeply unimpressive and one can just imagine how seedy it will look in 10 years time – it is all too childish a statement of insecurity and inadequacy!!

I have always found Cardiff to be a seedy and rather silly City with its desperate pretence that Welshness has any significance or ever did have – anything that is so insecure it has to keep leaping up and down to be noticed probably wasn’t worth noticing in the first place. Such a tragedy really as there are some stunningly beautiful areas of Wales to more than compensate for its inadequacy and quite palpable failure!

We then drove out of Cardiff and via a detour up the Rhumney Valley headed around the edge of Newport, yet another spectacularly unpleasant little town!

Back to Chepstow and Heather’s last night with us – it is such a pity she couldn’t have stayed as she would have been a huge boost for Lee who is understandably concerned about the next few months.

& HERE for John as he waits for Heather to come home:
The BT Stand is to the left. The previous Hyde...Image via Wikipedia

I just want to say sorry for copping out at times and leaving Lee and friends to cope!
Any help and support YOU can give her will be hugely welcome.
I do make a lousy patient!

.
If YOU want to follow my fight against Cancer from when it started and I first presented with symptoms see The TAB just below the Header of this Blog. called >DIARY of Cancer< just click and it will give you a long list of the main events in chronological order.
.
Thoughts and comments will be in chronological order in the main blog and can be tracked in the >ARCHIVE< in the Right Sidebar.

You may find the TABS >MEDICAL LINKS< and also >CANCER LINKS< of help.
.
YOU are welcome to call me if you believe I can help in ANY way. .

Posted by: Greg Lance-Watkins
tel: 01291 – 62 65 62
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11-Oct-2008 – Comment To Kerry McCarthy MP on HER BLOG.

11-Oct-2008 – Comment To Kerry McCarthy MP on HER BLOG.

2008 October 11 07:30:27 MSD
Posted By: Greg_L-W.
Discussion
Greg_L-W.’s Blog

Hi,

I just posted this as a comment on Kerry McCarthy MP’s web blog at: http://kerry-mccarthy.blogspot.com/2008/08/too-much-to-ask.html
 
Perhaps you would care to post YOUR comment too!

Regards,
Greg L-W.

<quote=”Kerry McCarthy MP”> Monday, 11 August 2008 Too much to ask Breaking news from the Guardian… which doesn’t particularly surprise me where Bristol is concerned, but it’s very useful to have the figures with which to confirm my suspicions. Although it doesn’t necessarily mean that the PCTs who turned down appeals are in the wrong; NICE is there for a purpose, and generally I would back its decisions.

But I see its role primarily as ensuring that public money doesn’t get wasted on virtually useless products being pushed by big pharmaceutical companies. It gets more difficult when there is clear proof that the drug does have some positive effect, but it comes down to a cost-benefit-analysis, which is roughly based on cost of the drug cf. additional years of quality life. How do you decide whether giving someone an average six months extra is worth £30,000?

The PCT exceptional funding appeals panels are meant to look not at whether someone’s personal circumstances are exceptional, but whether their potential response to treatment sets them apart from other applicants. So it’s not about whether you’ve got young children, or have led a blameless life, or whatever (which would get you into very difficult territory); it’s about whether you’re likely to live longer, respond better, etc. (Correct me if I’m wrong on that, someone).

I had one constituent recently who appealed successfully against being refused the kidney cancer drug Sutent – see my The Drugs Don’t Work post from July, and no I didn’t really mean that the drugs don’t work as one email correspondent thought. On Friday however I was visited at my surgery by another constituent whose father has kidney cancer and is being denied Sutent. The family are faced with selling their belongings to try to fund the drug privately. They could also fall foul of the ridiculous NHS co-payment guidelines, which basically mean that if you pay for the drugs privately, you have to pay for everything privately. (We’re doing something about that, thank God, although it won’t come quickly enough for my constituent’s father.)

Although my constituent’s father doesn’t live in Bristol, I’ve said I’ll do what I can to support his appeal, along with his own MP. I’m not sure we’ll succeed this time, given the NICE interim guidelines. But how do you tell someone what price you think should be put on a year of her father’s life? Posted by Kerry at Monday, August 11, 2008 </quote>

1 comments: <quote=”Greg L-W.”>
Hi,
May I take the liberty of reminding you of the self serving speech of our glorious leader Gordon Brown in his speech on the 60th anniversary of the NHS:

“As individuals in Britain we know that – should serious illness strike – we will be cared for and the cost of that care will be absorbed not by us as individuals, but by all of us together – in a comprehensive healthcare system publicly funded by taxation”

This is the man who as Chancellor has racked up a National debt of £650bn.; achieved a deficit in government Pensions of £760bn.; accrued a deficit of over £90bn. in local Government pensions, achieved a debt of between £500bn. & £1.3Trillion on PFI.

Then he found £100bn. for professional gamblers who backed the wrong numbers in the City casinos at Northern Rock, Now followed by £500bn. for those daft enough to take £Millions in bonuses whilst robbing the system blind.

Now it looks as if we are to fund Iceland and the cupidity of the idiots in Local Government & Public Services who took John Prescott’s advice and have lost yet more £Billions of other people’s money – well that’s socialism I guess.

Yet we are expected to turn a blind eye to Brown’s lies in his statement about the NHS where a very small sum relatively would avoid the Government sheltering behind its cronies in its appointed QUANGOs as they EUthenase patients against their will based on economic expediency.

Perhaps someone can explain the difference between prescribing the wrong drugs to kill patients and prescribing no drugs and killing them against their will – How long before New Labour open Harald Shipman Wards in all hospitals to kill off patients who are inconvenient – starting I note with Kidney Cancer patients by refusal of Sutent, Nexavar, Torisil or Avastin when clinically required.

Just as Tony Blair’s Government was guilty of lies about WMDs & Delivery Systems leading to War Crimes & Crimes Against Humanity by their actions and dishonesty – now we have Gordon Brown’s Government guilty of murdering British citizens in hospital beds!

If you want to learn more about Kidney Cancer have a look at http://www.KidneyCancerResource.com or contact me on 01291 – 62 65 62 or eMail me on Greg_L-W (Greg_L-W@BTconnect.com)
 
Thank you for having tried to help one of your constituents with Renal Cell Carcinoma recently perhaps you could extend that to changing the system that kills NHS patients!

Regards,
Greg Lance-Watkins
11 October 2008 04:13 </quote>

Warm Hands,
Regards,
Greg L-W.

I just want to say sorry for copping out at times and leaving Lee and friends to cope!
Any help and support YOU can give her will be hugely welcome.
I do make a lousy patient!

. If YOU want to follow my fight against Cancer from when it started and I first presented with symptoms see The TAB just below the Header of this Blog. called >DIARY of Cancer< just click and it will give you a long list of the main events in chronological order. . Thoughts and comments will be in chronological order in the main blog and can be tracked in the >ARCHIVE< in the Right Sidebar. You may find the TABS >MEDICAL LINKS< and also >CANCER LINKS< of help. . YOU are welcome to call me if you believe I can help in ANY way. .

Posted by: Greg Lance-Watkins
tel: 01291 – 62 65 62