07-May-2011 – 02:30hrs. MAU NEWPORT! Well I’ve Seen The Doctor!

07-May-2011 – 02:30hrs. MAU NEWPORT! Well I’ve Seen The Doctor!
Hi,
well having come in at about 20:00hrs. Finally all tests done cultures etc. and the results are back and FINALLY, although I knew I was doomed to stay, I have JUST seen the Doctor.

02:30hrs. and I have actually seen someone qualified in my field!

They have however finally cleared the waiting room:

A young lass who gave her name as Minna, probable Persian or Arab (actually Iraqi/Pakistanni parents), pleasant and as with all other treatment I have had she was thorough.
I gather my platelets are down to 34 – The Consultant Haematologist has been suitably woken/annoyed ;-).
The action plan is put me onto an anti biotics for the possible infection, seemingly from the mouth/teeth as clearly the imune system is somewhat stuffed and having trouble coping with the normal infections that flourish in the mouth!!!
As for transfusing, since the normal range of platlets is around 150,000 to 300,000 expressed as 150 to 300 and mine are now down to 34 the plan is to leave well alone for the rest of the night (what little exists) keeping a watching brief and then do a full set of bloods in the morning.
Once the new bloods are through then the decisions will be made!!!
Meanwhile back at the ranch and they are trying to find me a bed – that will no doubt keep half a dozen managers occupied! I gather I MAY get a bed but failing that they will put me on a trolley.
This is in the NHS where in Wales the blithering idiots in the so aptly named National ass for Wales have squandered £1Billion of health service money.

I note even the discredited half wits in the Welsh Lib. Dims. stated in their election leaflet:

Labour and Plaid are wasting a staggering £1Billion in our NHS.
They’ve wasted money shuffling bureaucrats around instead of focusing on the real problems.
This money should have been spent on healthcare – wasting it is a disgrace.

Not least of the stupidities has been rebadging The Gwent area NHS from the meaningless Glan Hafran Trust to the even more foolish Aneurin Bevan Trust – rebadging EVERYTHING – so just imagine the cost of that.

They have even produced an entirely new uniform for all the nurses right across Wales – they are ugly beyond belief!

Imagine a nurses uniform top that is firstly too short for the width of all too many of the nurses!
Secondly what idiot would design a nurses uniform that could ONLY be removed over the head!

This of course is prone to destroying any effort they may make to have a hair style, but far more concerning, do the idiots who designed them expect nursing staff to cut their way out and throw them away if they become contaminated with let us say blood, faeces or vomit!

Did anyone do any joined up thinking?
I am also aware that many of the nurses have found the new fabric used causes rashes.
The NHS quite clearly, like so much else in the over blown and over pasi public sector Kleptocracy of QUANGOs needs root and branch pruning reducing the useless levels of management and political nere do wells and apparatchicks by at least 50% to start with.
How can we expect a decent health service when it is dragged to its knees, not by medical requirements but management incompetence and political interferrence.
Oh well I gather I am considered quite unwell – it is astonishing that after 4 hours sleep last night I was awake at about 09:30hrs. And it is 03:00hrs. And still no bed.
The medical side jumps through all the hoops and delivers to the best of the equipment and manpower available.
Yes there ARE more managers feeding off of The NHS than there are beds – it is those excessive managers who believe that the best way to improve the service is to pay ever higher salaries, perks and pensions to managers and fund it by out sourcing basic secretarial services to Indian companies via Irish sub contractors – you couldn’t make it up could you!
OK no bed is likely to be available but they can give me a trolley in the open trolley bay!
I wonder how many wards the managers have closed this weekend to fund their salaries and pension contributions.
We have decided that since bloods will probably be somewhere around 05:00hrs. to 06:00hrs. I’ll stay in this consulting room and if very tired I can doze!
I just want to say sorry for copping out at times and leaving Lee and friends to cope!
Any help and support YOU can give her will be hugely welcome.
I do make a lousy patient!

.
If YOU want to follow my fight against Cancer from when it started and I first presented with symptoms see The TAB just below the Header of this Blog. called >DIARY of Cancer< just click and it will give you a long list of the main events in chronological order.
.
Thoughts and comments will be in chronological order in the main blog and can be tracked in the >ARCHIVE< in the Right Sidebar. You may find the TABS >MEDICAL LINKS< and also >CANCER LINKS< of help.
.
YOU are welcome to call me if you believe I can help in ANY way.
.

Posted by: Greg Lance-Watkins
tel: 01291 – 62 65 62
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27-Apr-2011 – 11:00hrs. Velindre FOR FULL BLOODS!

27-Apr-2011 – 11:00hrs. Velindre FOR FULL BLOODS!

Giant Platelets on a blood smear (40x).Image of Platelets (purple) via Wikipedia

Hi,

well it was schlep off to Velindre – initially I thought at a sensible time!Well I suppose most people are OK with mornings but I tend to write at night once the phone has died down so I am not very good on mornings!

The appointment for today started out as chemo at 15:00hrs. which seemed perfectly reasonable – no rush to get up, a leisurely shower and when we got around to it a gentle putter down the M4 – OK 32  miles is no big deal but when you start the day feeling dead headed any effort isd so much easier to put off!

Anyway I have to be there at 11:00hrs. for bloods – YES it does take best part of an hour to have them done and then have a coffee whilst we wait, in the canteen (praise be it is very good coffee).

Then saunter over to The CDU cardboard box and check in with the staff to be sure the results are through so we are now running at about 12:00hrs.

No problems as I gather all my various blood checks are seemingly OK – Woopy firstly I have it confirmed they haven’t killed me yet with this toxin they are poring into me – SECONDLY I can have my next dose of chemo. I have this, sadly all too rational fear that they may say – Sorry the response on the bloods, or what ever, is wrong we have to stop the chemo!

I wonder if that would be a death sentence!!

Well I’m OK this time although the platelet count is a bit low [Platelets, or thrombocytes (from Greek θρόμβος, “clot” and κύτος, “cell”)] – so Lee and I decide to have lunch whilst we wait for the chemo to be made up to the right dose for me in the Pharmacy.

Lunch was actually very good value although eating anything is becoming ever more of an eye watering experience due to the increasingly sore mouth ulcers which are well under way – particularly inside lower lip, inside lower jaw and on either side of my tongue and across the back of the tongue.

I gather this is all part of the fun of chemo! FOR SOME PEOPLE.

Please don’t think that if you have been prescribed chemo your symptoms will be the same as mine:
FIRSTLY:
There are many types of chemo and they come in different dosages.
SECONDLY:
Chemo is NOT an exact science and everyone seemingly reacts differently to the drug and the dosage.

So I may well have mouth ulcers whilst another person has hair loss, headaches or nose bleed.

I gather nausea is fairly standard but I’ve avoided that SO FAR and lethargy is also standard – which explains my feeling tired.

Lunch for me was a generous prawn salad (COOL & just about swallowable!) Lee had an equally generous and well filled baggette (I wish, but the crust would have been like a mouth full of razor blades – the salad was sore enough!).

Pleasant as the canteen is and friendly as the staff and other diners are it is not somewhere I would by choice spend almost 3 hours trying to pass the time!

Well its just gone 14:00hrs so back to CDU.

I just want to say sorry for copping out at times and leaving Lee and friends to cope!
Any help and support YOU can give her will be hugely welcome.
I do make a lousy patient!

.
If YOU want to follow my fight against Cancer from when it started and I first presented with symptoms see The TAB just below the Header of this Blog. called >DIARY of Cancer< just click and it will give you a long list of the main events in chronological order.
.
Thoughts and comments will be in chronological order in the main blog and can be tracked in the >ARCHIVE< in the Right Sidebar.

You may find the TABS >MEDICAL LINKS< and also >CANCER LINKS< of help.
.
YOU are welcome to call me if you believe I can help in ANY way.
.

Posted by: Greg Lance-Watkins
tel: 01291 – 62 65 62