06-Jun- 2011 – CLINIC – RESULTS & THE PLAN!

06-Jun- 2011 – CLINIC – RESULTS & THE PLAN!

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Hi,

Shortly after returning from the canteen our name came up and it was into Clinic with Dr. Lester.

Chatted for a few moments about having eventually got married after 26 years – he was quite miffed as we had beaten him as he had been with his partner for 23 years when they got married! He was originally a Londoner but has married a Welsh girl.

Anyway cutting to the chase:

Firstly he is surprised at how spot on my bloods are considering I’ve got one kidney, one adrenal gland years of cancer and buckets of chemo!!

He sees no problem there and is very pleased he has managed to so successfully trash my bloods every time with chemo thus starving the cancer.

Now for the scan:

Some good and some not so bad!

For the first time he feels he can, since I understand the limitations, talk of a cure.

Obviously this is NOT a cure of cancer but a cure of this outbreak and we then have a watching brief, if lucky, for the next return!

Even if we win this round it could be back in 3 months, or 3 years or if VERY lucky longer.

Caveat:

The tumour on the Uretal stump would seem to have shrunk by about 20% that is OK but not wonderful.

The Radiologist and he had conferred and they believe that the Lymph Node which was necrotic & cancerous seems free of cancer but due to deformation it is hard to be certain.

Schematic diagram of a lymph node showing flow...LYMPH NODE Image via Wikipedia

However it does seem that the Lymph Node on The Femoral Artery which was believed to be cancerous almost definitely isn’t and is, like apparently many lymph nodes, naturally deformed and NOT cancerous.   

So What Now & Why:

OK so the game plan changes!

Dr. Lester is relatively pleased particularly as the cancer HAS responded to chemo on the dosages he advocated but it hasn’t destroyed it totally.

The fear is now that if he ploughs on for the full programme as originally planned the cancer may well become imune to the treatment but the chemo will go on beating me up! I gather the aim is to kill the cancer before you kill the patient!

So we now give it one more round of chemo to ‘drive the nail home’ so to speak.

That is a day 01 which is on Wednesday 08-Jun-2011 which is Carb & Gem

Then the following Wed 15-Jun-2011 which is a day 08 with Gem only.

The next phase will be a schedule of 20 hits of Radio Therapy – 5 days a week for 4 weeks. But more of that later when IO know what the full game plan is.

Lester did say that the sideeffects are less punishing but that I am likely to be very tired during the last 2 weeks – Hardly surprising 80 Mile round trip to Velindre on the same boring bit of M4 every day!!

So that is the game plan so far.

I’m ‘fairly’ laid back about it – but then again what choice do I have! So it is best to not get wound up about it – laughing is always a good medicine and with all my various contacts and blogs I just don’t have time to be concerned! JUST SCARED 😉

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I just want to say sorry for copping out at times and leaving Lee and friends to cope!
Any help and support YOU can give her will be hugely welcome.
I do make a lousy patient!

.
If YOU want to follow my fight against Cancer from when it started and I first presented with symptoms see The TAB just below the Header of this Blog. called >DIARY of Cancer< just click and it will give you a long list of the main events in chronological order.
.
Thoughts and comments will be in chronological order in the main blog and can be tracked in the >ARCHIVE< in the Right Sidebar.

You may find the TABS >MEDICAL LINKS< and also >CANCER LINKS< of help.
.
YOU are welcome to call me if you believe I can help in ANY way.
.

Posted by: Greg Lance-Watkins
tel: 01291 – 62 65 62
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06-Jun-2011 – BLOODS, CLINIC, DELAYS & THE REAL WORLD!

06-Jun-2011 – BLOODS, CLINIC, DELAYS & THE REAL WORLD!

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  Hi,

Just to put some of this in perspective:

Mortality from cancer worldwide

Each year more than 7.5 million people worldwide die from cancer. Because of the size of its population around half of these people (50%) are in Asia). Around 12% of deaths worldwide are from cancer. The proportion of all deaths caused by cancer varies, from only 4% in Africa to 23% in Northern America ( Figure 3.11-2). In the UK around 24% of all deaths are caused by cancer.

Even considering WHO predictions that Cancer deaths will rise to 15M a year by 2020 CLICK HERE worldwide that is scarey but a tiny weenie number when you consider there will be approaching 8 Billion people alive then.
So currently out of around 56 Million deaths a year only about 7.5 million are related to cancer.
OK that’s you dead from boredom with statistics but it does put some facts around the fear 😉
Now to really bore you!
So on Monday Lee and I went to Velindre for a Clinic as although I had not been notified last Thursday I remembered I had Chemo on Wednesday (low on my priorities that week!) but when did they intend to check my bloods and when was Dr. lester going to come up with the results on my scan.
As anyone who has played these games will know – you desperately want the results of scans but you try to put them off as it MIGHT be a death sentence – Scanziety!
Anyway I bit the bullet and I suggested I came in for clinic on Monday and then if there was a problem someone else, with luckier results, could have my Chemo slot on Wednesday!
So we walker into Velindre on time! Another 40 miles down the M4! More of that later, but I’ve had a bit of a cunning wheeze I think!
It is astonishing in that busy hospital with all those agitated and concerned faces around just howmany seem to greet me by name!! I suppose it is ‘cos of the crazy ‘T’Shirt slogans and the determination to laugh about life and laugh with people however rough it gets!!
It is astonishing how many people end up chatting as they sit their looking glum and you say ‘Hi great to see you are still alive it gives me hope’! They ALWAYS smile after that!
Anyway – in for another armful of blood to be taken! No problem we were laughing about the risks of washing up when you are on Chemo – DANGEROUS might cut your finger!!
Right so off the blood samples go and the tests, which are done mechanically (well electro Mechanically sort of electronic and printed out on screen) are then human checked by someone with one of the world’s most boring jobs! 
That should take just over 20 minutes but in any busy blood unit it takes nearer an hour – werll it is all down to resources and of course Managers come far before Medical Care! Clearly there are far too many managers and parasites in the Kleptocratic QUANGOcracy.
What we need is more clinical & medical staff – not more parasites – clearly there is a log jam at Bloods and another in Radiography.
I would NOT have possibly terminal Cancer if instead of squandering £1Billion The Local Welsh Health Service had not squandered the money but bought the required Scanners and funded them. The scan I should have had in the first 2 weeks of January so that this could all have been sorted with simple surgery but waiting until the end of March to prove what we already knew led to metastases that may well kill me!

ANNOUNCEMENT:

whilst we were chatting with a couple where the wife had been a Sister at The Royal Gwent, in one of the few units she believed functioned OK, her husband had Prostate Cancer and was waiting for news of scans with a mixture of bold equanimity and trepidation – don’t we all!

The announcement was that Dr. Jason Lester’s clinic was running 90 minutes late!

Actually nuisance as it may be I never really mind – he sets up his clinic on a planned time scale, as is essential, but when he sets it up he has no way of knowing just how long his patients may take to assimilate what may be very grave news and he will – as I have seen repeatedly, give the time that is needed to every patient according to that need.

I may need that time one day and I may well think of the delay but …

So Lee and I checked in with the sister managing the clinic and asked if we could Mike Off to the canteen for an hour – no problem, the coffee is better, it is comfier and there is an outside view!

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I Have Been Fighting Cancer since 1997 & I’M STILL HERE!
I Have Cancer, Cancer Does NOT Have Me
I just want to say sorry for copping out at times and leaving Lee and friends to cope!
Any help and support YOU can give her will be hugely welcome.
I do make a lousy patient!

.
If YOU want to follow my fight against Cancer from when it started and I first presented with symptoms see The TAB just below the Header of this Blog. called >DIARY of Cancer< just click and it will give you a long list of the main events in chronological order.
.
Thoughts and comments will be in chronological order in the main blog and can be tracked in the >ARCHIVE< in the Right Sidebar.

You may find the TABS >MEDICAL LINKS< and also >CANCER LINKS< of help. . YOU are welcome to call me if you believe I can help in ANY way.
.

Posted by: Greg Lance-Watkins
tel: 01291 – 62 65 62
on: http://GregLanceWatkins.Blogspot.com  
TWITTER: Greg_LW  
Health/Cancer Blog: http://GregLW.blogspot.com  
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