SKELETAL SCANS! – My Haloween Portrait?

SKELETAL SCANS! – My Haloween Portrait? 
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To Give Hope & Information

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Hi,

I guess not many people’s blogs have a full frontal (Anterior) and rear (Posterior) picture of the blogger without clothes.

What a relief it is a skeletal scan rather than a normal photograph!

I gather this shows no signs of cancer in the bones nor signs of gross tumours elsewhere. It was a huge relief when I was declared ‘bone sound’! It is not a deffinite repriev but it is not the death sentence it might have been.

NEDM – No Evidence of Distant Metastases.

For the fuller write up of when the scan was done CLICK HERE

04-Apr-2011 – 10:10hrs? – Royal Gwent – Full Body Bone Scan
Be in for 09:30hrs. pick up bloods sheet from urology & see phlebotomy FIRST – the Radiography for the full skeletal scan on a machine quite like this:

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NOTE:
The shadow of the remaining kidney on the Right side.
The massive hernia to Left abdomen
The skeletal distortion due to hernia.
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NOTE:
This is the same Anterior image but on a ‘Pulse’ setting! Yeah, I’m not sure what the settings are/mean but when I find out I’ll add it in!
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NOTE:
The remaining Right Kidney shows up much better on this scan where it is closer to the back than front.
You can also see the spinal deformity due to the very visible Left side hernia.
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NOTE:
This is the same Posterior image but on a ‘Pulse’ setting! Yeah, I’m not sure what the settings are/mean but when I find out I’ll add it in!

 
On this setting various new things become visible – I’m not sure I will guess them right but I’ll have a go and obviously my hard core medical info. is subject to correction by someone who knows what they are talking about – rather than my semie informed guesses in this instance!
Mid thorax there is a puzzling anomaly which had everyone guessing for a while but after further XRays on another machine it was decided the strangely vacant area was probably some long past injury but was NOT thought to be cancerous, malignant or threatening (I got the impression no one quite knows what has caused it!
Moving down I believe that the ‘flares’ just above the bladder may well be Lymph Nodes that are enlarged, cancerous and necrotic (But I’m not sure!). I may be entirely wrong as on the previous pic. the two flares seem to be aligned with a part of the pelvis!
Then there is a ‘flare on the outer left of the bladder upper which would seem to be the uretal stump which has become cancerous and is the current primary that must be ‘zapped’ (Medical term for can we kill it before we kill the patient!!

CAVEAT & REQUEST!
Anyone who can throw further light on these scans on a professional basis in lay/patient language would be much appreciated.

Do please send me an ‘e’mail and I will OBVIOUSLY protect your professional identity if you so wish.

Thank you and I’m sure those reading this blog will appreciate any help you can give, particularly corrections and developement of my comments!
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My Blogs
To Spread The Facts World Wide To Give Others HOPE
I Have Been Fighting Cancer since 1997 & I’M STILL HERE!
I Have Cancer, Cancer Does NOT Have Me
I just want to say sorry for copping out at times and leaving Lee and friends to cope!
Any help and support YOU can give her will be hugely welcome.
I do make a lousy patient!

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If YOU want to follow my fight against Cancer from when it started and I first presented with symptoms see The TAB just below the Header of this Blog. called >DIARY of Cancer< just click and it will give you a long list of the main events in chronological order.
.
Thoughts and comments will be in chronological order in the main blog and can be tracked in the >ARCHIVE< in the Right Sidebar. You may find the TABS >MEDICAL LINKS< and also >CANCER LINKS< of help.
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YOU are welcome to call me if you believe I can help in ANY way.
.

Posted by: Greg Lance-Watkins
tel: 01291 – 62 65 62
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27-Apr-2011 – 14:00hrs. Velindre CHEMO TREATMENT

27-Apr-2011 – 14:00hrs. Velindre CHEMO TREATMENT

Hi,

lunch was pleasant in the canteen which is just across the driveway from the CDU cardboard box so when the time came I wandered in to be plugged up with no waiting time.

The chemo nurse was brilliant as she had made me up a prescription for yet more mouth washes for the Mouth Ulcers, with much reassurance that they would have me eating toast in no time!!! She lies so charmingly 😉

As we came in she asked Lee if she would mind taking the prescriptions around to the pharmacy which she was good enough to do – I gather it is a VERY busy pharmacy and prone to major glitches due to under manning – as ever management seem unable to get the logistics right on staffing or ‘kit’, much too busy on ego projects squanderring money that should be spent on the core service on footling politically correct stupidities and rebadging to make childish points!

Well this time it was into the chair and a cannula in the left hand – I just have this feeling that if they manage to damage a hand, nerve whatever I am much better off with it being the left hand – I am VERY non ambidextrous!

Fortunately needles never seem to be a problem with me and very rarely are they painful or bleed (Well So Far!).

A quick proving sluice into the vein of saline solution and then the bag is switched to the gemcitabine which is the chemo drug with the saline carrier where as the carboplatin is using a glucose carrier and is light sensative. So just the gemcitabine this time which was over fairly rapidly (about 40 minutes).

Whilst the last of the gemcitabine was being run in the sister kindly rang up Dr. Lester’s secretary for me as I had a request!!!

I would like copies of my skeletal bone scan and the precedingCT Scan – surprisingly in all the years she has been working at Velindre apparently no one has ever asked for them!

I explained that I wanted to put them onto my blog so that people could see exactly what I am talking about – it is easy to put ‘similar’ examples from medical texts and the internet up but I thought my own would be more informative.

She has promised to give Neville Hall in Abergavenny, who hold the CT Scan, a call and Janet at The Royal Gwent in Newport who have the bone scan also to ensure there are no protocol problems.

Janet has already told me there are no problems fr4om her end – after 13 years dealing with me she has got used to me having odd requests 😉

just as that call finished Lee returned with her tales of woe and confussion from pharmacy where every muddle conceivable seemed to be taking place with quite ill people waiting for an age before they could start their journeys home.

Whilst Lee told me of pharmacy the nurse washed out the vein with saline and disconnected me removing the cannula.

Free to go!

Although the treatment took quite a while – well from about 11:00hrs to gone 15:30hrs. there were no glitches.

Well that was my third visit to velindre and my second chemo over and I really must comment just how cheery the staff are – neither Lee nor I have run into a single staff member who hasn’t been prepared to go that extra 9 yards to help. Not knowing our way around the hospital every time you ask for directions they don’t just point nebulously and send you on your way they always lead you to the next junction and show you which corridor to take, with a smile.

So very much better than hospitals like The Gwent which have become huge, impersonal, intimidating and not to mention filthy!

On the way home we stopped off at Boots pharmacy in Chepstow where they had been unable to fill one of my prescriptions before we left this morning, we stopped off for a bit of shopping and I parked the car and by the time I had sat down for a coffe I was on the verge of nodding off again!!

I am increasingly noticing waves of tiredness – fortunately Lee and I have no consequential time commitments other than the regular hospital visits so I tend to sleep if I need to.

I just want to say sorry for copping out at times and leaving Lee and friends to cope!
Any help and support YOU can give her will be hugely welcome.
I do make a lousy patient!

.
If YOU want to follow my fight against Cancer from when it started and I first presented with symptoms see The TAB just below the Header of this Blog. called >DIARY of Cancer< just click and it will give you a long list of the main events in chronological order.
.
Thoughts and comments will be in chronological order in the main blog and can be tracked in the >ARCHIVE< in the Right Sidebar.

You may find the TABS >MEDICAL LINKS< and also >CANCER LINKS< of help.
.
YOU are welcome to call me if you believe I can help in ANY way.
.

Posted by: Greg Lance-Watkins
tel: 01291 – 62 65 62

04-Apr-2011 07:15hrs. I SUPPOSE I’D BETTER FACE IT ALL! BONE SCAN

04-Apr-2011 07:15hrs. I SUPPOSE I’D BETTER FACE IT ALL! BONE SCAN

Hi,

To view The Scan Images CLICK HERE

having eventually gone to sleep last night (well actually this morning) I had the alarm set for 07:15hrs. so that I would have time to get up have a shower and leave at 08:00hrs. although it is only half an hour to Newport I had no idea what so called rush hour would be like and I had to find parking so not wanting to be late the day started early for me.

Lee had slept in the spare bedroom partly because I have become a VERY restless sleeper and I didn’t want to wake her leaving but she was up making me coffee when I stumbled out of bed at 07:30hrs.

Lee is being very stoic but it is not possible to hide her fear – understandably, she has known me since 1974 or 5 and we have been together now for 26 years for more hours of the day than most as we have worked together all of that time.

Anyway of I go and as for rush hour in Newport one wonders if ANYONE works as the traffic was light and the main bus queues were school children off to school – The industries of Newport are long cone, the tool makers, the steel works, the coal industry and the docks to be replaced by a raft of useless bureaucrats and a collection of naff lumps of tortured iron work trying to be passed off as art!

Newport is a truly horid town with nothing going for it and it has been said that if Britain was to be given an ennema the tube would be put in Newport – but clearly that was said by someone who hasn’t been to either Bettws and it is Cardiff Bay that produces the largest output of noxious flatulence!!

0840hrs. in the hospital on the Urology unit saw Steph picked up a slip for bloods from Janet and off on the trek to Phlebotomy – in and done by 09:30hrs. and off to find Nuclear Medicine on floor 3.

Arrived early for the appointment and apparently my dosage has to sit and lose strength for about 15 minutes so I went for a coffee. Back spot on just as a yound woman about 37/8 emerges with her Mother and having had a Nuclear treatment is told to be back in two hours – I reminded her that although it was Newport she must be sure not to get pregnant in those two hours as it said on all the forms stay away from pregnant women and babies (My Pleasure!!).

Oh well they laughed and it broke the gloom and trepidation in the waiting room!! (It transpired later that the poor woman has had Crohn’s Disease for 18 years steadily getting worse!)

Straight in and a tiny needle in the right arm this time fill with blood and then evacuate into my arm!

I gather this is Tritium and Phosphate or some such (as I recal Tritium is an isotope of water!! I presume the phosphate is to make it ‘stick’) – I am now sent off for 3 hours to let this permeate my bone structure where I gather it will show up hot spots!!

For a Hospital the main canteen is quite pleasant and airey so whilst I read the papers and drank my required two pints of fluid – I pondered why everyone is so horrified at the idea of reorganising The NHS.

Perhaps someone can tell me why in an NHS canteen there are so many junk tinned and bottled fizzy drinks, water in plastic sterate bottles, fatty food, fried and or with batter!

This leads to the obvious outcome – I can think of nowher I could go with an edless succession of grossly over weight people and the patients are, many of them, even fatter!

13:00hrs. and I’m well cooked and ready for the Rotisserie!

A Machine Very Similar To This!

On the bed ready to roll – well NOT really, the machine which had a new control part fitted on Thursday is now on the blink!

Back into the waiting room whilst they hit the machine with a bigger hammer and some choice ‘word’, after a reboot or two its off again!

The 3 huge ‘cameras?’ swing into position and the one above me starts to pulse up and down with my breathing 2″ from my nose and then it starts and for 25 minutes I slowly emerge leaving a trail on the VDU!!

Another wait whilst the Radiographer has a look at the scan and then off to X Ray as there is an area seemingly ajoining the spine mid rib cage right hand side that they are not happy about.

NOT HAPPY!! You can guess how ‘Happy’ I am!!

So it is onto the big overhead XRay machine and half a dozen plates from strange angles!

I have this nasty feeling they are hunting for a soft tissue image of a possible tumour on, in or by the spine!

Sadly it is above everyones’ pay grade to count me in on the Easter Egg Hunt!

I guess it is good for their figures, as if they can make you wait they have every chance the stress will give you a coronary and you die on someone else’s statistical sheets!

Oh well all will be revealed on Wednesday and Janet has me in for an appointment with Doctor Lester at 12:00hrs.

I dropped the car off with Derek on the way home and he ran me home as he is going to put the car through MOT between my appointments and ensure it is reliable and won’t let Lee or I down for appointments or when we need it. The last thing we need is car hastles at the moment!

My thanks to Derek – we have a small number of very reliable friends and it has been quite humbling that so many UKIP branch chairmen, members and etc (to prevent embarrassment) have written, eMailed and phoned to wish me well and beg me not to quit keeping them informed as I am the only source (with Junius) of honest information they trust, with a proven track record, that informs them about their own Party!

Well we can’t let a bit of tedious cancer get in the way of the flow of news in defence of these United Kingdoms can we!

Thanks for your support it is hugely valued as is that of the many other friends who have contacted me.

I just want to say sorry for copping out at times and leaving Lee and friends to cope!
Any help and support YOU can give her will be hugely welcome.
I do make a lousy patient!

.
If YOU want to follow my fight against Cancer from when it started and I first presented with symptoms see The TAB just below the Header of this Blog. called >DIARY of Cancer< just click and it will give you a long list of the main events in chronological order.
.
Thoughts and comments will be in chronological order in the main blog and can be tracked in the >ARCHIVE< in the Right Sidebar.

You may find the TABS >MEDICAL LINKS< and also >CANCER LINKS< of help.
.
YOU are welcome to call me if you believe I can help in ANY way.
.

Posted by: Greg Lance-Watkins
tel: 01291 – 62 65 62
Enhanced by Zemanta

03-Apr-2011 – Tomorrow Is just daunting!

03-Apr-2011 – Tomorrow Is just daunting!

Hi,

I have to be at The Royal Gwent Hospital at 09:00hrs. in the morning – for me that time of day is quite daunting enough!

That means leaving the house for a 1/4mile walk to where my car has to be parked, due to idiotic planning by MBC. So to be sure to be on time I need to leave at about 08:00hrs. so up at about 07:15hrs.

I guess as the treatment ‘beats me about’ I’d better get one of those Blue Badges just in case I plain can’t cope with a walk that far!

Yeah I know that is making a fuss about something all sorts of people do as a natural every day but may I remind them they haven’t had this bastard disease for 13 years! My sleep patterns are crazy!

So find somewhere to park at The Royal Gwent and pick up a form from whoever is on duty on The Urology Unit and set out on the trek to Phlebotomy for them to take at least half an arm full of bloods – before we go any further My Consultant wants to know every detail he can, which is reassuring.

Then for the trek to Nuclear Medicine where I am due at 10:00hrs. to WILLINGLY!!!! be injected with a Radioactive Isatope (as if the Japanese folly isn’t delivering enough already! – Well the probably will soon!).

I then have to find something to do for about 4 hours until I glow from every bone!

Then back to be scanned for a full skeletal scan – I’m told there are no side effects from the drug/injection but I must say if I am to keep away from Pregnant Women and small children (easy as it tends to be a habit on my part!!) I just have this feeling that if it MIGHT harm third parties then it can’t be doing me much good!

Interestingly, as Lee will confirm, I am finding it increasingly difficult to actually DO anything or make decisions – which at a time like this is so very selfish of me but I am increasingly focusing on beating this vile disease. Perhaps it will be a bit more rational after Wednesday when I get the results and we ‘Make a Plan’ for treatments and what that might entail.

~~~~~~~~~~#########~~~~~~~~~~
I just want to say sorry for copping out at times and leaving Lee and friends to cope!
Any help and support YOU can give her will be hugely welcome.
I do make a lousy patient!
~~~~~~~~~~#########~~~~~~~~~~

. If YOU want to follow my fight against Cancer from when it started and I first presented with symptoms see The TAB just below the Header of this Blog. called >DIARY of Cancer< just click and it will give you a long list of the main events in chronological order.
.
Thoughts and comments will be in chronological order in the main blog and can be tracked in the >ARCHIVE< in the Right Sidebar.

You may find the TABS >MEDICAL LINKS< and also >CANCER LINKS< of help.
.
YOU are welcome to call me if you believe I can help in ANY way. .

Posted by: Greg Lance-Watkins
tel: 01291 – 62 65 62