15-Jun-2011 – My LAST CHEMO in This Round!

15-Jun-2011 – My LAST CHEMO in This Round!
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Hi,

well today is the last hit with Chemo in theory!

We arrived on time but unsure whether to go straight to ‘Bloods‘ or to CDU (Chemo Day Unit) – we opted for CDU and as we walked in Louise was by the door with a cheery greeting and Carmen came over with a big hug and how is it going 😉

I asked if they wanted me to go to bloods but they did it on the unit for me and sent them off as they thought it would be quicker.

Meanwhile rather than hang around Lee and I went off to RadioTherapy booking to see if we could get a better appointment – 09:50hrs. on a Friday Morning seemed a bit like victimisation from Chepstow!!!

No problem atall and we are now booked for 11:50hrs. which seems a whole lot more civilised!

The secretary was great and gave us a couple of very good leaflets in an attempt to explain RadioTherapy and the procedures – I gather I get a tattoo for them to spot focus on! I thought a bat would be better than a butterfly but apparently all I get is a dot!

I must admit tattoos have always mystified me and why would ANYONE think they are a lavatory wall and cover themselves with graffiti? Almost as foolish as filling yourself with nuts, bolts and rings with piercings which virtually without exception look revolting.

Well back to the CDU dropping off a box of chcolates at ‘Phlebottomy’ and then via the information unit with all its leaflets and computers for patients to use – to CDU where a box of chocolates was most welcome!

A few minutes later and having chatted with a couple of anxious looking newcomers it was off to my chair and plug up for this weeks dose ofChemo. The cannella seems easier each time and then a quick flush with saline to clear the vein and ensure it is OK, whilst The Gemcitabine is set up on the stand for delivery.

It is tedious waiting for this dose of toxin to be pumped into you – well aware that MAYBE it will make you better but for sure it will make you feel ropey! However the atmosphere on the unit seems to take a lift when Lee and I arrive with all these angst ridden folk looking concerned by the end of the session we seem to have them all telling jokes and chatting together comparing notes!

I must say I find it so much easier to cope with having some black humour and banter – Otherwise it can be rather unrelenting gloom, as lets face it none of us are exactly well!

On completion, with no drugs to collect we have been berrated by all the staff to drop in whenever we are back for RadioTherapy or clinics – and we will because these cheery folk have made what could have been a daunting and scarey ride more of a party!

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I Have Been Fighting Cancer since 1997 & I’M STILL HERE!
I Have Cancer, Cancer Does NOT Have Me
I just want to say sorry for copping out at times and leaving Lee and friends to cope!
Any help and support YOU can give her will be hugely welcome.
I do make a lousy patient!

.
If YOU want to follow my fight against Cancer from when it started and I first presented with symptoms see The TAB just below the Header of this Blog. called >DIARY of Cancer< just click and it will give you a long list of the main events in chronological order.
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Thoughts and comments will be in chronological order in the main blog and can be tracked in the >ARCHIVE< in the Right Sidebar. You may find the TABS >MEDICAL LINKS< and also >CANCER LINKS< of help.
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YOU are welcome to call me if you believe I can help in ANY way.
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Posted by: Greg Lance-Watkins
tel: 01291 – 62 65 62
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08-Jun-2011 – Off for day 01 Chemo on my third cycle DOUBLE HIT!

08-Jun-2011 – Off for day 01 Chemo on my third cycle DOUBLE HIT!

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Hi,

well my bloods were OK on Monday in fact they were ‘spot on’ to quote Lester.

So here we go for another double whammy of Chemo – just as I was starting to feel normal lets have another go at feeling bl”dy awful with mouth ulcers, no energy, despondency and infected teath with abscesses!

Oh Joy 😉

But the rest of the news is far better so whilst you read Alice’s essay above on the >TAB< I’ll see what I can come up with as an update!

Regards,
Greg_L-W.

 Please Be Sure To
My Blogs  
To Spread The Facts World Wide
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I just want to say sorry for copping out at times and leaving Lee and friends to cope!
Any help and support YOU can give her will be hugely welcome.
I do make a lousy patient!

.
If YOU want to follow my fight against Cancer from when it started and I first presented with symptoms see The TAB just below the Header of this Blog. called >DIARY of Cancer< just click and it will give you a long list of the main events in chronological order.
.
Thoughts and comments will be in chronological order in the main blog and can be tracked in the >ARCHIVE< in the Right Sidebar.

You may find the TABS >MEDICAL LINKS< and also >CANCER LINKS< of help.
.
YOU are welcome to call me if you believe I can help in ANY way.
.

Posted by: Greg Lance-Watkins
tel: 01291 – 62 65 62

07-May-2011 – YELLOW CARD – Bored, Knackered and Uncomfortable

07-May-2011 – YELLOW CARD – Bored, Knackered and Uncomfortable

DID I SAY I HAVE CANCER & I’m ON CYTOTOXIC CHEMOTHERAPY 
with a platelet count of 34 that is falling and clear signs of infection!

Hi,

I’m sitting in a consulting room in The Royal Gwent Hospital where I arrived at just after 20:00hrs. yesterday and it is now about 05:30hrs. and in a disgusting display of utter incompetence of the management structure of The NHS under the devolved irresponsibility of the super annuated Welsh Council they STILL have failed to find a bed for me!

This is where I have been since I arrived for urgent medical attention at the request of my Consultant’s staff at Velindre 9.1/2+hrs. ago:

In view of the circumstances and the state of my health how do YOU feel about the chair I spent the night in!

I was unable to sleep past 09:30hrs. on the 06-May02011 after about 4.1/2hrs. sleep so that is over 20hrs. without sleep so far and so far one coffee, no food and iced water from the cooler in reception since about18:00hrs.

Did I tell you I’m here ‘cos I’m not well and my Consultant’s team believes I need prompt and competent attention – perhaps someone can tell me how this level of abuse by the management of the NHS can be other than damaging to my health and possibilities of survival?

So in boredome lets consider The Velindre NHS Trust YELLOW CARD!

I will scan the card when I get home but here is the text:

Front Cover:

VELINDRE NHS TRUST

I am a patient on Cytotoxic Chemotherapy

NANE DETAILS NUMBER etc.

DRUGS: CARBOPLATIN & GEMCITABINE

CONSULTANT: LESTER

If you are unwell or are admitted to
another hospital for any reason contact
Velindre Cancer Centre aany time day or night

Telephone: 029 2061 5888 and ask for the
nurse with the chemotherapy pager.

Inside Front Cover:
Information for patients

You must contact Velindre Cancer Centre
immediately any time day or night if:

You have a temperature of 37.5C or above

flu like symptoms, chesty cough or any
other signs of infrction

shivering episodes

unusual bruising or bleeding

vomiting more than once in 24 hours

four or more bowel movements, or 4
episodes of diarrhoea in 24 hours

mouth ulcers or soreness that stops
you eating or drinking

you are admitted to another hospital
for any reason

Information for healthcare staff:

This is a Velindre patient receiving chemotherapy
treatment and is at risk of

Neutropenic sepsis

Treat all infective episodes seriously and promptly
with antibiotics.

If febrile will need urgent FBC and blood cultures.

If signs of shock or obviously unwell:

Do Not wait for blood results, administer IV
antibiotics as per neutopenia protocol:

http://www.wales.nhs.uk/sites3/home.cfm?OrgID=357

commence IV fluids

take serum lactate, glucose and clotting screen

monitor urine output – may need catheter and

hourly urine measurement

adminsiter 100% oxygen

consider referral to critical team

Contact Velindre immediately if this patient
is admitted for any reason. We have 24 hour
access to medical records and oncologist advice.

Telephone: 029 2061 5888 and ask for the nurse
with the chemotherapy pager.

The back page:
this page is not very relevant as it is just contact addresses that Velindre Cytotoxic chemotherapy patients might need!

Well its 04:30hrs.

No bed no antibiotics and I’ve just had a chat with one of the nursing staff and voiced my concern just think what The Yellow Card says!

Last Monday I came in and YES I had a very minor infection but a judgement was taken that my bloods were OK to cope with this but to keep an eye on it at home and monitor my temperature.

Clearly SOMETHING was going wrong sufficient for Velindre to require hands on checking and care – my platlet counts are down to 34 when norm is 150 to 300 – I have clear signs of infection showing in the blood and a Consultant on the phone is happy to let my infection rise and do nothing until after more bloods sometime in the future without checking with Velindre, without clear explanation and without seeing me!

This does look like crass irresponsibility and at this stage I may well take some very serious convincing that this is NOT utter irresponsibility.

I just want to say sorry for copping out at times and leaving Lee and friends to cope!
Any help and support YOU can give her will be hugely welcome.
I do make a lousy patient!

.
If YOU want to follow my fight against Cancer from when it started and I first presented with symptoms see The TAB just below the Header of this Blog. called >DIARY of Cancer< just click and it will give you a long list of the main events in chronological order.
.
Thoughts and comments will be in chronological order in the main blog and can be tracked in the >ARCHIVE< in the Right Sidebar.

You may find the TABS >MEDICAL LINKS< and also >CANCER LINKS< of help. . YOU are welcome to call me if you believe I can help in ANY way.
.

Posted by: Greg Lance-Watkins
tel: 01291 – 62 65 62

20-Apr-2011 – THE DAY HAS COME – CHEMO. DAY ONE!!!

20-Apr-2011 – THE DAY HAS COME – CHEMO. DAY ONE!!!

Hi,

well the day has come!

I can’t say I am not concerned but it would be a huge exageration to claim I’m scared of it – I am anything but as chemo may prove to be my very best friend and save my life – despite all the grave warnings of sickness, hair loss, being ill, feeling terrible and the like – all give you a temperature be it a bit high or a bit low failure leaves you COLD!

So this is the first step to recovery, even if due to the sheer incompetence of the National Ass for Wales management of what was once a National Health Service – and was meant to be just that under the Beverrage Plan until the idiot Aneurin Bevan was given the job of implementing the policy which having failed to understand it – in part from inate stupidity but much as a result of his Champagne Socialist prefferences and idiology not to mention the input of his Marxist wife Jenny Lee.

The result has been that The NHS has become an over managed, mismanaged political football surrounded by Political idiologies and acting through its multi layered Kleptocrtatic QUANGOcracy as little more than a sponge to mop up unemployable quasi socialist middle class management of clearly low grade.

How come I find 3 stories of A&E in a pile of cardboard boxes as a permanent potacabin encampment at The Royal Gwent if it were not for missmanagement?

The huddle of cardboard boxes bolted onto the Velindre Hospital as a CDU (where I have my chemo.) with ramped bits of board to join up the levels on uneven ground. I gather this cardboard city was a temporary measure whilst further facilities were built but 3.1/2 years on there is no sign of the building and the ceilings in the cardboard boxes is buckling and breaking up.

One only ever notices ceilings in Hospital Beds and Honey Moon Suites!

This is a product of The Devolved Irresponsibility of The risibly over styled dump for useless space wasting of The Welsh Assembly Government.

A useless QUANGO in itself – merely a means of rubber stamping EU Directives and bribing yet another army of unemployable lick spittles who have, so I am reliably informed in print by The equally idiotic Lib.Dims. have wasted £1Billion of health SERVICE money in the last 12 months!

Sadly I am not surprised – When you note the huge amount of time, effort and investment that has been put into re-badging The Gwent Hospital Trust as ‘The Aneurin Bevan Hospital Trust’ and kitting out all the nurses in new uniforms and re-liverying all the Hospital and Trust vehicles – Did this help a single patient? Did it clean a single filthy ward? Did it save a single life?

I believe you will find that every question gets an emphatic NO.

However for lack of competent management and utter dishonesty and failure to supply the hospital with the requisite CT Scanner or for that matter manage additional shifts to ensure clinical needs were met – I for one may prove in the long run to have been killed by the self serving utter incompetence of Health Care Wales which sees itself as a job creation and marketing organisation designed to display the incompetence and irrelevance of most forms of Consultancy and Administarion, when particularly exempt from accountability as is too often the case in the feather bedded world of The Snivel Cervants.

Well off to Velindre we left with time to spare expecting to arrive at 12:45hrs. for 13:00hrs. – NO SUCH LUCK!

Just before the Coldra Roundabout the traffic ground to a halt – so we phoned to say we would be late but no idea when the CDU was great and just reassured us it would be OK they would fit us in. As a result of some rather ‘rapid’ driving after we passed the single lorry sitting undamaged in the center lane about 5 miles on, we were a mere 20 minutes late!

No problem we gather as Pharmacy is running 1.1/2 hours behind (A Management problem due to lack of allocation of resources in staff numbers to maintain the right output for clinical need) – IS THERE ANY PART OF THE NHS NOT BEING DESTROYED BY ITS OWN USELESS MANAGEMENT?

Well after much time wasting eventually we set off on the treadmill, so to speak.

Bed allocated and then the tedium of signing my life away admitting I knew the risks and knew this was not a cure and knew etc. etc. etc. and now sign this form.

I kept thinking if they can’t manage to keep the ceiling boards up and house the unit in something more solubrious than a glorified packing case wjhat chance they had a clue what they were doing with the medical treatment!!

Anyway medical steps:

01: Place fist and forarm in a bucket of hot/warm water for 5 minutes to relax and open all the veins (that’ll fool them!)

02: Find a suitable vein on the back of the hand and see if you can make it hurt as you insert a cannula needle:

03: Flush the vein for a few minutes with saline.

04: Switch to a bag of chemo that goes in at 999mg an hour so about 40 minutes!
      The first bag was the Gemcitabine which is using a saline carrier – no effects discomfort or pain

05: Flush the vein for a few minutes with saline.

06: Switch to a second bag of chemo that goes in at 999mg an hour so about 40 minutes!
      The second bag was the Carboplatin which uses a glucose carrier base and is in a black bag cover as it is light sensative (I hope I have these two the right way around! More to the point I hope they did!!!!) – no effects discomfort or pain.

07: Flush the vein for a few minutes with saline.

08: remove needles/cannula & tapes and away to go 😉

09: WELL NOT QUITE!
      More ‘debriefing’ this time with a care packet and warnings that I may have all sorts of dire consequences like sickness & heavy periods!! well that’s what the leaflet says! diarrhoea, flue like symptoms, temperature and durance vile!!
So here is a big bag of specialist anti sickness pills and our phone number 24/7 if you have ANY queries.

Well let the lions into the arena and as a gladiator about to do battle salute the Emperor:
‘Those about to die Salute you Caesar’

It was more convincing in The Colosseum than in a cardboard box set up as a Welsh NHS chemo clinic I’m sure!

Well off home expecting to be ill at any moment and shiver and ache with the ague!

Eventually I went to bed at about 04:00hrs. having waited until I was feeling ill so that I could THEN try to sleep on and sleep through it – but no sign of the ill bit, so I gave up and went to bed!

I do feel sorry for Lee – I have no option but enjoin the battle but she has the onerous task of watching and hoping that all will be well, it must be very scarey for her after more than half of her life with me!

I just want to say sorry for copping out at times and leaving Lee and friends to cope!
Any help and support YOU can give her will be hugely welcome.
I do make a lousy patient!

.
If YOU want to follow my fight against Cancer from when it started and I first presented with symptoms see The TAB just below the Header of this Blog. called >DIARY of Cancer< just click and it will give you a long list of the main events in chronological order.
.
Thoughts and comments will be in chronological order in the main blog and can be tracked in the >ARCHIVE< in the Right Sidebar. You may find the TABS >MEDICAL LINKS< and also >CANCER LINKS< of help.
.
YOU are welcome to call me if you believe I can help in ANY way.
.

Posted by: Greg Lance-Watkins
tel: 01291 – 62 65 62

Gemcitabine and Carboplatin Chemotherapy – Leaflet!

Gemcitabine and Carboplatin Chemotherapy – Leaflet!

291 and 322

Information leaflet on gemcitabine
and carboplatin chemotherapy

This leaflet provides information on a course of chemotherapy called gemcitabine and carboplatin. The leaflet will explain what this is and when and how it will be given. It will also tell you about common side effects that you may experience. Contact telephone numbers and details of how to obtain further information on this chemotherapy are given at the end of the leaflet.

This leaflet should be read alongside the ‘General information for patients receiving chemotherapy’ leaflet. If you haven’t received this leaflet please ask your nurse for a copy.

What is gemcitabine and carboplatin chemotherapy?
This is a chemotherapy treatment which consists of two drugs which are given in a drip:

Gemcitabine
Carboplatin

Why am I having gemcitabine and carboplatin chemotherapy?
Your doctor has prescribed this chemotherapy because it has been found to be effective in treating your type of cancer.

How often will I receive my chemotherapy?
For this treatment to be most effective it is given at specific time intervals. These intervals are known as cycles. It is usual to have a cycle of carboplatin and gemcitabine every four weeks for up to six cycles. Your doctor will discuss with you the exact number of cycles you will receive.

In each cycle you will receive chemotherapy twice, these are known as day 1 and day 8 treatments. The gemcitabine is given on both day 1 and day 8. Carboplatin is given on either day 1 or day 8. Your doctor or nurse will explain this in more detail.

How often will I have to visit the hospital?
Your chemotherapy treatment will usually be on a different day to your clinic appointment. You will usually need to visit the hospital three times in every four week cycle:

Clinic appointment – at this outpatient clinic appointment you will have a blood test and you will be check how you are feeling and discuss any problems you may have. This is so that you can checked how the chemotherapy is affecting you. If your blood results are satisfactory, your chemotherapy will be prescribed. This appointment is usually a few days before your chemotherapy appointment.

If you live far away your chemotherapy may be arranged for the same day as your clinic appointment. There is always a delay between seeing the doctor and being given your chemotherapy. If your chemotherapy is on the same day as your clinic appointment you should expect to be in the hospital for between four and eight hours.

Day 1 chemotherapy appointment – you will spend up to 1½ hours in one of the day case treatment areas. Please allow 30 minutes longer for your first visit. You will be given anti sickness medicine and your chemotherapy, you may neither feel sick nor be sick, I wasn’t, but it may be a good idea to take the tablets anyway as they can do you no harm and its a bit late to take it once sickness has started!

That said I personally declined the tablets, keeping them in reserv should I feel a need in the future – silly perhaps but not only are we all different but much of overcoming cancer is, I believe, never loosing control

Day 8 chemotherapy appointment – You will need to allow 2 – 3 hours for this visit. You will have a blood sample taken. The result will be checked before pharmacy can make your chemotherapy. We will give you anti sickness medication and your chemotherapy.

You are welcome to bring someone to stay with you during your treatment. Space is limited in the waiting areas and treatment room so there is not usually room for more than one person. Treatment areas are not suitable for young children



How will my chemotherapy be given?
Your chemotherapy is given through a drip into a vein in the back of your hand or arm. Alternatively it may be suggested that a fine tube called a PICC is inserted into one of the large veins in your upper arm. This line can remain in place for the whole of your treatment. Your doctor or nurse will discuss this further with you.

What is a PICC Line: 
A PICC line (peripherally inserted central catheter) is a long, thin, flexible tube known as a catheter.
It is inserted into one of the large veins of the arm near the bend of the elbow.
It is then threaded into the vein until the tip sits in a large vein just above the heart.

What are the possible side effects?
There are a number of possible side effects which can occur with this chemotherapy. The doctor, nurses and pharmacists can give you advice or answer any questions you may have.

Hair loss
You should not lose your hair with this chemotherapy. However, a small number of people experience some hair thinning. We have a leaflet that tells you more about coping with hair loss. Please ask your nurse for a copy.

Sickness
Nausea and vomiting are uncommon these days as we will give you anti-sickness medicines which are usually extremely effective. If you are sick more than once in 24 hours despite taking regular anti-sickness medicine, you should contact Velindre Cancer Centre for advice. The telephone number is on page 7 of this leaflet.

Infection
You are at an increased risk of picking up infections because your white blood cells which help fight infections can be reduced by this treatment. Contact Velindre Cancer Centre immediately if you develop any signs of infection, for example flu like symptoms or a temperature above 37.5°centigrade. The telephone number is on page 7 of this leaflet.

Diarrhoea
Diarrhoea is not common with this chemotherapy. However, if you have four or more bowel movements in 24 hours above what is normal for you please contact Velindre Cancer Centre immediately. The telephone number is on page 7 of this leaflet.

Tiredness and fatigue
Chemotherapy can make you feel more tired than usual. It is important to listen to your body and rest if you need to, but carry out your normal activities if you feel able. Some people find it beneficial to take gentle exercise as well as taking rest.

Sore mouth
Your mouth may become sore or you may notice small ulcers. Please follow the advice on caring for your mouth in the general chemotherapy leaflet. Your doctor may prescribe mouthwashes or medication to prevent or clear any infection.

Flu like symptoms
Approximately 20% of patients may experience flu like symptoms in the first 48 hours following gemcitabine treatment. This is usually mild and short lived. Symptoms may include fever, chills, muscle aching, headaches and tiredness. If your temperature is above 37.5oC please contact Velindre Cancer Centre immediately. The telephone number is on page 7 of this leaflet.

Skin changes
Gemcitabine may cause an itchy rash in some patients. Medication is available to treat this so please tell your doctor or nurse if this occurs.

You may also notice some swelling of your ankles. This is usually mild and will stop when your treatment is completed.

Allergic type reaction
A small number of patients experience an allergic type reaction to carboplatin. If this occurs you may feel hot or flushed, itchy, light-headed or generally unwell whilst receiving your carboplatin. This can be easily treated. Please tell your nurse immediately if you experience any of these symptoms.

Other side effects
Some patients experience some discomfort along the vein when gemcitabine is being given as a drip. This problem may occur more frequently as you have more treatments. Having a PICC line inserted will prevent this problem from occurring. If you would like more information please speak to your nurse or doctor.

Women sometimes find that chemotherapy treatment can affect their periods. They could become heavier, lighter or even stop altogether.

It is important you do not become pregnant or father a child whilst having chemotherapy treatment as chemotherapy could damage the unborn baby.

Manufacturer’s patient information leaflets
Copies of drug manufacturer’s patient information leaflets are available from the Velindre Pharmacy, or on the internet at www.medicines.org.uk These leaflets provide detailed information about individual drugs. They are not given out routinely as they do not usually provide information on combinations of drugs, and can be difficult to read. Please ask if you would like a copy.

Contact telephone numbers

Velindre Cancer Centre 029 2061 5888
Ask for the chemotherapy pager if you are unwell at home and need immediate attention at any time of the day or night. For example you should phone if you:
• Are sick more than once in 24 hours
• Have a temperature of 37.5°C or above
• Have diarrhoea

Pharmacy department 029 2061 5888 ext 6223
Monday – Friday 9am – 5pm for queries about your medicines

Tenovus freephone 0808 808 1010
cancer helpline
Monday – Friday 9am – 4.30 for general queries on cancer

This leaflet was written by health professionals. The information contained in this leaflet is evidence based. The leaflet has been approved by doctors, nurses and patients. It is reviewed and updated annually.

Prepared September 2004
Reviewed September 2009

For the original posting CLICK HERE

For leaflets on other Chemotherapy leaflets CLICK HERE

I just want to say sorry for copping out at times and leaving Lee and friends to cope!
Any help and support YOU can give her will be hugely welcome.
I do make a lousy patient!

. If YOU want to follow my fight against Cancer from when it started and I first presented with symptoms see The TAB just below the Header of this Blog. called >DIARY of Cancer< just click and it will give you a long list of the main events in chronological order. . Thoughts and comments will be in chronological order in the main blog and can be tracked in the >ARCHIVE< in the Right Sidebar. You may find the TABS >MEDICAL LINKS< and also >CANCER LINKS< of help. . YOU are welcome to call me if you believe I can help in ANY way. .

Added: 26-Dec-2015:

You may well find the additional, very diagramatic presentation of ‘Chemo & its side effects’ which you can find at CLICK HERE of further help – there are various similar examples shown both on and attached to other postings on this web site and postings I have made.

You are also welcome to call me, if you feel I may be able to help – minded that I am NOT medically trained – as I have now (Dec-2015) had cancer of various types since presenting with symptoms in Nov-1997.

Never forget the reaction to drugs of every individual is different and variable – we are all different in many ways! Male, female, DNA, age, weight, health, body type, ethnicity and environmentally etc x etc! ;-))

Posted by: Greg Lance-Watkins
tel: 01594 – 528 337

06-Apr-2011 – I’ve SEEN Dr. LESTER (Specialist) & HAVE THE VERDICT!

06-Apr-2011 – I’ve SEEN Dr. LESTER (Specialist) & HAVE THE VERDICT!

Hi,

with some trepidation Lee and I set out with enough time to be there at about 11:45hrs. for a mid day appointment with Dr. Jason Lester, who is to be my new consultant I gather.

Dr. Jason Lester is a specialist Oncologist on the staff at Velindra – the specialist cancer facility in Cardiff.

As ever not a scrap of parking so now we are running ‘tight’ but I know a back street off of the Permit Parking Zone but in my haste modified the side sill of the car on a near invisible wall on the left below my line of sight – annoying but it is only tin!

Just made it in time to find Dr. Lester was running 15 minutes late!

In we go and Janet and I think Dr. Button also there and met Dr. Lester.

Much more relaxed in manner and easy to chat with – assured me he would tell it like it is etc.

He made a point of including Lee and making sure we understood details etc.

Well it is ‘somewhat’ better news as it is confirmed they could not find trace of cancer in the bones anywhere – it seems the area on my right thoracic spine is still not making sense but is not cancer – an old trauma of some sort? Lester seems certain it is completely unrelated to the cancer, which is a relief.

So the aim is chemotherapy with a possible follow on of Radiotherapy.

Best case scenario is that this shrinks and destroys the cancer and buys time – with no reason against it buying years but in the realisation that chemotherapy as the art is now rarely has a good outcome a second time!

Worst case scenario is that chemo plain doesn’t work and then I have less than 6 months so lets hope it works for me 😉

There is no doubt that cancer concentrates the mind and it is astonishing to think that there are currently around 2 Million people in the UK with cancer at the moment!

The plan of action is that first he needs to know accurately, how efficient my remaining kidney is, this will be done at Velindra within 2 weeks in their nuclear medicine facility.

On the outcome of this he will ajust the dosage of chemo accordingly: I need X amount of chemo for Y hours in the blood stream so if my kidney is tacking toxin out fast I will need a larger dose and vica versa.

The chemo I am to have is Gemcitabine and Carboplatin administered in a drip. The dose and mix is varied but is administered once a week 7 days apart and takes about 1.1/2hrs. the first time and around 45 mins. subsequently and a cycle is two weeks being dosed and one week off.

The aim is to start out with 6 cycles with CT scans to see the progress when Dr. Lester deems apposite.

He is fairly upbeat as I am clearly not one to quit after keeping ‘The Bastard’ at bay for 13 years now and he liked the way I was facing it!! He also felt I had general health on my side but obviously stated there are no guarantees.

That said Lee and I are far more relaxed about it than we have been for a while.

Frankly if The Royal Gwent managers weren’t on a bloody silly ego trip weenie waggling about being ‘clever dick’ Welsh this conversation could have been in mid January but the incompetence of over manning and over managing in the NHS means they have been much too busy making fools of themselves with new names, uniforms and livery for their tiny corner of the NHS to pay attention to the health of patients!

There is a mismatch in supply of radiography and nuclear medicine facilities that would have saved more lives with better funding and better management rather than the management showing their insecurity and inadequacy by wasting time and money on fashion and frippery.

There is every reason to believe that if the Hospital management had been doing their job competently I would have had the result of my biopsy from the op on New Years Eve and the relevant CT scan so that I could have had the tumour on the uretic stub removed with a coin/cuff around it and the bladder resealed by mid January without ANY spread to the lymph glands.

What the clowns in management don’t seem to get their head round is that whilst they make the Trust and the idiots in The National Ass for Wales look good with silly new names and uniforms they have potentially cost a small fortune in treatment that they need not have spent and have had more to invest in health and well being of patients – who cares what they call their trust or what livery they waste money on.

Surely it is a NATIONAL HEALTH SERVICE – not some foolish parochial Welsh life style and fashion industry!!

Mental midgets at the levers of power will eventually destroy the health service as they have so much else in Britain!

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To Give Others HOPE
I Have Been Fighting Cancer since 1997 & I’M STILL HERE!
I Have Cancer, Cancer Does NOT Have Me
I just want to say sorry for copping out at times and leaving Lee and friends to cope!
Any help and support YOU can give her will be hugely welcome.
I do make a lousy patient!

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If YOU want to follow my fight against Cancer from when it started and I first presented with symptoms see The TAB just below the Header of this Blog. called >DIARY of Cancer< just click and it will give you a long list of the main events in chronological order.
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Thoughts and comments will be in chronological order in the main blog and can be tracked in the >ARCHIVE< in the Right Sidebar.

You may find the TABS >MEDICAL LINKS< and also >CANCER LINKS< of help. . YOU are welcome to call me if you believe I can help in ANY way.
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Posted by: Greg Lance-Watkins
tel: 01291 – 62 65 62
on: http://GregLanceWatkins.Blogspot.com  
TWITTER: Greg_LW  
Health/Cancer Blog: http://GregLW.blogspot.com  
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