2008 August 17 18:44:32 BST
Posted By: Greg_L-W.
Greg_L-W.’s Blog

I note with some interest the lengthy tortalogous definition of PCT Policy which has been tracked down which follows:
This is a typical attempt of a PCT to explain why they are refusing to fund cancer treatments. This is from their policy document.
Guidance for considering exceptionality¡¦ in individual cases
Oxfordshire Commissioning Board decision – Policy Statement 80a

The Oxfordshire Case Review Committees consider requests to fund individuals for treatments which currently fall outside commissioning policies and agreements. A patient will not normally be funded, unless exceptional circumstances apply. The purpose of the Case Review Committees is to carefully consider, within the Ethical Framework, whether such circumstances exist. The key question is: On what grounds can this patient be funded when others will not be?¨ The Oxfordshire Priorities Forum gives guidance for decision making about ¡§exceptional cases¡¨. It is not appropriate to give specific examples of exceptionality. Definition of exception: A particular case which falls within the application of a rule, but to which the rule is not applicable. Definition of exceptional¨: of the nature of or forming an exception; unusual or special.
General guidelines: 1. It is stated on the Priorities Forum low priority¡¨ policies Potentially exceptionalcircumstances may be considered by the patient¡¦s PCT where there is evidence of significant health status impairment (e.g. inability to perform activities of daily living)¡¨. 2. By definition, ‘exceptional’ may not necessarily be predicted or spelt out in advance. 3. The fact that a patient¡¦s clinical picture matches ¡¥accepted indications¡¦ for a treatment which is not normally provided is not, in itself, exceptional. 4. The fact that the treatment is (or is likely to be) efficacious for a particular patient is not, in itself, exceptional. 5. Consideration will be given to evidence that shows that the benefit from the treatment for the patient would be significantly greater than would be expected for an average patient. 6. It is for the requesting clinician (or the patient) to demonstrate why they should be considered as an exception.


Individual Patient Requests
Exceptional Status (what makes the individual sufficiently different from the usual in policy terms)

Central to consideration of individual requests for funding is the concept of the case being exceptional.
In order for funding to be agreed there must be some unusual or unique clinical factor about the patient that suggests that they are:
„« Significantly different to the general population of patients with the condition in question
„« likely to gain significantly more benefit from the intervention than might be expected from the average patient with the condition.
„« The fact that a treatment is likely to be efficacious for a patient is not, in itself, a basis for an exception.
„« If a patient‘s clinical condition matches the ‘accepted indications’ for a treatment that is not funded, their circumstances are not, by definition, exceptional.
„« Social value judgements (the ‘worth¡¦ of patients) are not relevant to the consideration of exceptional status but there may rarely be exceptional circumstances where benefits may go beyond the patient (e.g. as a carer) in respect of social or health related benefits for others.

This guide is in addition to the Oxfordshire Priorities Forum Lavender policy on ¡§Guidance for considering exceptionality in individual cases¡¨, policy number 80a.
Oxfordshire Treatment Request Panel and Case Review Committee June 2007
Why we go to such lengths to track this sort of stuff down one has to wonder when we could so much more readily have obtained the original training manual for PCT Diktat Obfuscation when required to hide dishonesty and corruption in regulation documents.
Here is the relevant passage in the Drafting Officer’s Manual:
[QUOTE] “The fact that the Patient needed to know was not known at the time that the now known need to know was known, and therefore those of us who needed to advise and inform felt that the information that we needed as to whether or not to inform the highest authority of the known information was not yet known, and therefore there was no authority for the authority to be informed because the need to know was not yet known, or needed.” [/QUOTE]
I must admit that I have cheated a little as I substituted the word patient for prime minister in this section of speech by Sir Humphry in ‘Yes Minister‘.
For EU Regulations it may interest you to know that the Official drafting of ALL EU drivel is drawn up by French ENARCHS, who are, whilst at L’ Ecole National, it seems trained in the black arts of perfidy to write any sentence in a manner where that which is the diametric opposite of that which it would seem to indicate!
No one has yet managed to answer the simple question under Law – by which Act of Parliament are The State authorised to practice EUthenasia on selected groups? The fact that the Government shelter behind their appointed cronies in N.I.C.E., P.C.Ts. etc. makes it no less a State decision to EUthenase selected Kidney Cancer patients.
In a civilised society it is possible to judge its standards by the way it treats its weakest citizens. To administer a poison in order to kill someone is an act of MURDER – perhaps someone wiser than I in authority can explain how it is Morally any different witholding a needed and proven drug.
Be aware that – the self same Government which is advocating the deliberate Muder of certain selected Kidney Cancer patients on the grounds of cost efficacy of certain drugs has I understand sent over 600 people, besides athletes & trainers, to Beijing to watch people running around in circles or whatever – I understand the cost of an MP in terms of expenses runs to about £24K. This is the same Government that authorises the John Lewis List scam and the funding of London second homes for MPs.
More specifically this is the Government which Baroness Gardiner assured us in The House of Lords ‘spends upto £300,000,000 on tattoo removal’.
Just how can the deliberate Murder of Kidney Cancer Patients be justified?
Any ideas?
Regards, Greg L-W.

I just want to say sorry for copping out at times and leaving Lee and friends to cope!
Any help and support YOU can give her will be hugely welcome.
I do make a lousy patient!

If YOU want to follow my fight against Cancer from when it started and I first presented with symptoms see The TAB just below the Header of this Blog. called >DIARY of Cancer< just click and it will give you a long list of the main events in chronological order.
Thoughts and comments will be in chronological order in the main blog and can be tracked in the >ARCHIVE< in the Right Sidebar. You may find the TABS >MEDICAL LINKS< and also >CANCER LINKS< of help.
YOU are welcome to call me if you believe I can help in ANY way.

Posted by: Greg Lance-Watkins
tel: 01291 – 62 65 62